tag:blogger.com,1999:blog-74009253956748420772024-03-13T05:04:19.971-05:00Down Syndrome OPTIONsUnknownnoreply@blogger.comBlogger37125tag:blogger.com,1999:blog-7400925395674842077.post-10056784991749721922023-02-28T13:36:00.000-06:002023-02-28T13:36:01.436-06:00<p style="text-align: center;"> <b><span class="x193iq5w xeuugli x13faqbe x1vvkbs xlh3980 xvmahel x1n0sxbx x1lliihq x1s928wv xhkezso x1gmr53x x1cpjm7i x1fgarty x1943h6x xudqn12 x3x7a5m x6prxxf xvq8zen xo1l8bm xzsf02u x1yc453h" dir="auto"><span style="font-size: large;">Experience </span></span></b></p><p style="text-align: center;"><b><span class="x193iq5w xeuugli x13faqbe x1vvkbs xlh3980 xvmahel x1n0sxbx x1lliihq x1s928wv xhkezso x1gmr53x x1cpjm7i x1fgarty x1943h6x xudqn12 x3x7a5m x6prxxf xvq8zen xo1l8bm xzsf02u x1yc453h" dir="auto"><span style="font-size: large;">the Down Syndrome Innovations Conference </span></span></b></p><p style="text-align: center;"><span class="x193iq5w xeuugli x13faqbe x1vvkbs xlh3980 xvmahel x1n0sxbx x1lliihq x1s928wv xhkezso x1gmr53x x1cpjm7i x1fgarty x1943h6x xudqn12 x3x7a5m x6prxxf xvq8zen xo1l8bm xzsf02u x1yc453h" dir="auto"><span style="font-size: large;"><b>for yourself!</b> </span></span></p><p style="text-align: center;"><span class="x193iq5w xeuugli x13faqbe x1vvkbs xlh3980 xvmahel x1n0sxbx x1lliihq x1s928wv xhkezso x1gmr53x x1cpjm7i x1fgarty x1943h6x xudqn12 x3x7a5m x6prxxf xvq8zen xo1l8bm xzsf02u x1yc453h" dir="auto"><span style="font-size: large;"><br />Donate $25 or more via Zelle or PayPal to
downsyndromeoptions@gmail.com.</span></span></p><p><span class="x193iq5w xeuugli x13faqbe x1vvkbs xlh3980 xvmahel x1n0sxbx x1lliihq x1s928wv xhkezso x1gmr53x x1cpjm7i x1fgarty x1943h6x xudqn12 x3x7a5m x6prxxf xvq8zen xo1l8bm xzsf02u x1yc453h" dir="auto"> </span></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi1tUusPcsr-tlRjDbV92dsmGk11McHUZDzBwQz4wQ_Nk0KlIH1pHuOB6lPzeRLp2lyZsbCMt19iPiVeAbphdS_RRbBB1DdVoLU8hODlEoJTrzAkKsAwFcMTfcJQYIxE4GsAQcPJhakUu1zIRrbe4hsAYG1HNpzjQ-rbc9nWl96ad6NeWKsrwC4-1RB/s1629/ConfMarquee.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1629" data-original-width="1125" height="630" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi1tUusPcsr-tlRjDbV92dsmGk11McHUZDzBwQz4wQ_Nk0KlIH1pHuOB6lPzeRLp2lyZsbCMt19iPiVeAbphdS_RRbBB1DdVoLU8hODlEoJTrzAkKsAwFcMTfcJQYIxE4GsAQcPJhakUu1zIRrbe4hsAYG1HNpzjQ-rbc9nWl96ad6NeWKsrwC4-1RB/w435-h630/ConfMarquee.jpg" width="435" /></a></div><br /><p></p>Unknownnoreply@blogger.comtag:blogger.com,1999:blog-7400925395674842077.post-64636154203637731932023-02-04T10:02:00.001-06:002023-02-04T10:09:24.575-06:00Down Syndrome Innovations Conference<p><span style="color: #ce2e06;"> <br /></span></p><br /><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;"><tbody><tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvUyvxomtZQ2Ye6InmeKZCent25217onEaLcynz4J5lvf1FkDw4jVO-9gMH2P1wBMxs15g1WnWinqz8IsGavFUsIdhx_UmjiomzB4GpS0CzlLDk0aMjtQ2YSF4ITVIA0wNNHcd1B2N0fO6giTS0_5BJTPqhhoXtqCJ0r-syF-opr_WXKvhver9RaIk/s992/Screen%20Shot%202022-12-31%20at%202.54.10%20PM.png" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="358" data-original-width="992" height="141" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvUyvxomtZQ2Ye6InmeKZCent25217onEaLcynz4J5lvf1FkDw4jVO-9gMH2P1wBMxs15g1WnWinqz8IsGavFUsIdhx_UmjiomzB4GpS0CzlLDk0aMjtQ2YSF4ITVIA0wNNHcd1B2N0fO6giTS0_5BJTPqhhoXtqCJ0r-syF-opr_WXKvhver9RaIk/w391-h141/Screen%20Shot%202022-12-31%20at%202.54.10%20PM.png" width="391" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;"><span style="font-size: medium;"><b>February 24-25th Columbia, TN</b></span></td><td class="tr-caption" style="text-align: center;"><span style="font-size: large;"><b> </b></span></td><td class="tr-caption" style="text-align: center;"><span style="font-size: large;"><b> </b></span></td><td class="tr-caption" style="text-align: center;"><span style="font-size: large;"><b> </b></span></td><td class="tr-caption" style="text-align: center;"><span style="font-size: large;"><b> </b></span></td><td class="tr-caption" style="text-align: center;"><span style="font-size: large;"><b> </b></span></td><td class="tr-caption" style="text-align: center;"><span style="font-size: large;"><b> </b></span></td><td class="tr-caption" style="text-align: center;"><br /></td><td class="tr-caption" style="text-align: center;"><br /></td><td class="tr-caption" style="text-align: center;"><br /></td><td class="tr-caption" style="text-align: center;"><br /></td><td class="tr-caption" style="text-align: center;"><br /></td><td class="tr-caption" style="text-align: center;"><br /></td><td class="tr-caption" style="text-align: center;"><br /></td><td class="tr-caption" style="text-align: center;"><br /></td><td class="tr-caption" style="text-align: center;"><br /></td><td class="tr-caption" style="text-align: center;"><br /></td><td class="tr-caption" style="text-align: center;"><br /></td><td class="tr-caption" style="text-align: center;"><br /></td><td class="tr-caption" style="text-align: center;"><br /></td><td class="tr-caption" style="text-align: center;"><br /></td><td class="tr-caption" style="text-align: center;"><br /></td><td class="tr-caption" style="text-align: center;"><br /></td><td class="tr-caption" style="text-align: center;"><br /></td></tr></tbody></table><h4 style="text-align: center;"><span style="color: #ce2e06;"><span style="font-size: x-large;"><span style="font-size: large;"><a href="https://events.com/r/en_US/registration/down-syndrome-innovations-conference-columbia-february-876004?fbclid=IwAR0k2OALxLunmC5a_Et5Dgcpvm3TLEiObZAOx6rV8L13UFYtee_Kz2CDfUM">Speaker List & Registration</a></span><br /></span></span></h4><h3 style="text-align: center;"><span style="font-size: x-large;"> Refer friends to<span style="color: #e06666;"> get 25% off</span>! </span></h3><h3 style="text-align: center;"><span style="font-size: medium;">Email downsyndromeoptions@gmail.com for details.</span><br /></h3><h3 style="text-align: left;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgvZyKIekXB3I0h3b4XBgvuVHxm5xiUwQqKGFLE4OsBlzoKL7HyK_RV0OeTK5ebvk3uydgls9ttsx_3x6O4_dHgmWrhGvaIAxAxiMOp875f48JARJBl8oxn0A-PjyRepgITP977x98jK-EZXL3Az_juPC3wHKqzxxFiR_ASknXhl_k8xuKQ7VGllsZZ/s1162/Screen%20Shot%202022-12-31%20at%202.51.15%20PM.png" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="868" data-original-width="1162" height="478" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgvZyKIekXB3I0h3b4XBgvuVHxm5xiUwQqKGFLE4OsBlzoKL7HyK_RV0OeTK5ebvk3uydgls9ttsx_3x6O4_dHgmWrhGvaIAxAxiMOp875f48JARJBl8oxn0A-PjyRepgITP977x98jK-EZXL3Az_juPC3wHKqzxxFiR_ASknXhl_k8xuKQ7VGllsZZ/w640-h478/Screen%20Shot%202022-12-31%20at%202.51.15%20PM.png" width="640" /></a></h3><h3 style="text-align: left;">Thank you to our sponsors:</h3><br /><div class="separator" style="clear: both; text-align: center;"></div><div class="separator" style="clear: both; text-align: center;"></div><div class="separator" style="clear: both; text-align: center;"></div><div class="separator" style="clear: both; text-align: center;"></div><div class="separator" style="clear: both; text-align: center;"></div><div class="separator" style="clear: both; text-align: center;"></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjTr9tblx9JNauIch9aMnCyXHHJc5zlMFUD6l-4NsiPJsL5WYiCXppUwqPl222yQOpl7JL583pSxNc-UyO6YsxRuB709IkxlL9JPFSNMvNM1eRCeKKn2-5VZSmH4cMu62S-JpoDW3hSUN5wJ3TCdYr1Kwg8W7IYJW5Qy1-f7R7A6-l0bXFhmO27lKrd/s3562/DSFF_Logo.bmp" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1003" data-original-width="3562" height="90" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjTr9tblx9JNauIch9aMnCyXHHJc5zlMFUD6l-4NsiPJsL5WYiCXppUwqPl222yQOpl7JL583pSxNc-UyO6YsxRuB709IkxlL9JPFSNMvNM1eRCeKKn2-5VZSmH4cMu62S-JpoDW3hSUN5wJ3TCdYr1Kwg8W7IYJW5Qy1-f7R7A6-l0bXFhmO27lKrd/s320/DSFF_Logo.bmp" width="320" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiwIT-xIy71G3ynY31PtScaznnKyKFmKS72OZ-r4gcyiELlz6poQZ0FAK0Tg1RaRJHGPoJJpkxx-a1CYpVWu0OK9m4P6Z466feyh0K4pCOm_d0vP1cjmaTnQsyRs0faQsEnh3GeTx7fC0zkYbO0g5saQG7Ya4exGJ5dUcM0Gw1AKC11yovIY5r3O488/s542/Screen%20Shot%202023-02-01%20at%207.32.40%20AM.png" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="308" data-original-width="542" height="182" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiwIT-xIy71G3ynY31PtScaznnKyKFmKS72OZ-r4gcyiELlz6poQZ0FAK0Tg1RaRJHGPoJJpkxx-a1CYpVWu0OK9m4P6Z466feyh0K4pCOm_d0vP1cjmaTnQsyRs0faQsEnh3GeTx7fC0zkYbO0g5saQG7Ya4exGJ5dUcM0Gw1AKC11yovIY5r3O488/s320/Screen%20Shot%202023-02-01%20at%207.32.40%20AM.png" width="320" /></a><div class="separator" style="clear: both; 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margin-right: 1em;"><img border="0" data-original-height="326" data-original-width="1534" height="68" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhBPCB4a4OKMMD1o5IMMkmUn1EhVRD-vT_Ff1_HidI5h6p8ERSNn5WNTIaQECBVZHuXmSkMlBReAw7x1rMhc8s1B-A4b5pqjvOPKa6Kw7CnIaneKPngciuZ58UfJSjyo-zOc0QsXNhNs5oSK7pjUR5WfdDGXOJjHrcCi4sz08tNWNTTA41V5tiHkd2S/s320/Screen%20Shot%202023-01-18%20at%203.38.30%20PM.png" width="320" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhsY9U1PRIWLsvLrrtSufI2_54scdIP73C2YRx3qJkqJGXw6nT7CNnb9brUqE_A0ZYLeFAaj_3dor6Oz1cPLKivw3NSoNxqgPppmJd0czH5XGcs6c7PwryloN5SBp0Fx5-DHj7mxJoSR-kcf6vnQx0iAOFn1-1gJ7faNFULMGJ4H51jgFolEz7lu8pn/s530/Screen%20Shot%202023-01-29%20at%2010.22.41%20AM.png" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="100" data-original-width="530" height="60" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhsY9U1PRIWLsvLrrtSufI2_54scdIP73C2YRx3qJkqJGXw6nT7CNnb9brUqE_A0ZYLeFAaj_3dor6Oz1cPLKivw3NSoNxqgPppmJd0czH5XGcs6c7PwryloN5SBp0Fx5-DHj7mxJoSR-kcf6vnQx0iAOFn1-1gJ7faNFULMGJ4H51jgFolEz7lu8pn/s320/Screen%20Shot%202023-01-29%20at%2010.22.41%20AM.png" width="320" /></a></div><br /><br />Unknownnoreply@blogger.comtag:blogger.com,1999:blog-7400925395674842077.post-59256054804612656002023-01-14T06:30:00.001-06:002023-01-14T06:30:00.290-06:00<p><br /></p><p><span class="x193iq5w xeuugli x13faqbe x1vvkbs xlh3980 xvmahel x1n0sxbx x1lliihq x1s928wv xhkezso x1gmr53x x1cpjm7i x1fgarty x1943h6x xudqn12 x3x7a5m x6prxxf xvq8zen xo1l8bm xzsf02u x1yc453h" dir="auto"></span></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg0dB-DTMcF15bB1i4WFhty9YfCjV7ybt8Rs8RpxInw_iDKiVD4r0OPS-XN9u0sJtR7KHypPrmNDqBooM6lXdB4DknPgBwU1p_aSo3D62bHNUiW7Gs-HA_Y0yFzO4JpgcAiDKvnnxuPcM7lbpTGpaClyit3ZKWZpa0sRVNpkyp9U1NwQutOv2lvetx_/s1600/Paloma2.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1066" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg0dB-DTMcF15bB1i4WFhty9YfCjV7ybt8Rs8RpxInw_iDKiVD4r0OPS-XN9u0sJtR7KHypPrmNDqBooM6lXdB4DknPgBwU1p_aSo3D62bHNUiW7Gs-HA_Y0yFzO4JpgcAiDKvnnxuPcM7lbpTGpaClyit3ZKWZpa0sRVNpkyp9U1NwQutOv2lvetx_/w426-h640/Paloma2.jpg" width="426" /></a></div><br /><p></p><h2 style="text-align: center;"><span class="x193iq5w xeuugli x13faqbe x1vvkbs xlh3980 xvmahel x1n0sxbx x1lliihq x1s928wv xhkezso x1gmr53x x1cpjm7i x1fgarty x1943h6x xudqn12 x3x7a5m x6prxxf xvq8zen xo1l8bm xzsf02u x1yc453h" dir="auto"><i> </i></span><span class="x193iq5w xeuugli x13faqbe x1vvkbs xlh3980 xvmahel x1n0sxbx x1lliihq x1s928wv xhkezso x1gmr53x x1cpjm7i x1fgarty x1943h6x xudqn12 x3x7a5m x6prxxf xvq8zen xo1l8bm xzsf02u x1yc453h" dir="auto"><i>For Paloma</i> by April M. Aguilera, </span></h2><h2 style="text-align: center;"><span class="x193iq5w xeuugli x13faqbe x1vvkbs xlh3980 xvmahel x1n0sxbx x1lliihq x1s928wv xhkezso x1gmr53x x1cpjm7i x1fgarty x1943h6x xudqn12 x3x7a5m x6prxxf xvq8zen xo1l8bm xzsf02u x1yc453h" dir="auto">award-winning screenwriter and parent, </span></h2><h2 style="text-align: center;"><span class="x193iq5w xeuugli x13faqbe x1vvkbs xlh3980 xvmahel x1n0sxbx x1lliihq x1s928wv xhkezso x1gmr53x x1cpjm7i x1fgarty x1943h6x xudqn12 x3x7a5m x6prxxf xvq8zen xo1l8bm xzsf02u x1yc453h" dir="auto">will be shown at the DSI Conference!</span></h2>Unknownnoreply@blogger.comtag:blogger.com,1999:blog-7400925395674842077.post-18693751367748669682023-01-13T14:29:00.006-06:002023-01-13T15:46:50.455-06:00 DSI Conference Speaker Spotlight: Dr. Carol Brown, Ed.D<p> </p><div class="x11i5rnm xat24cr x1mh8g0r x1vvkbs xdj266r x126k92a"><div dir="auto" style="text-align: start;"><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhLEvE6vJG5ixuy5rFLzRH9wgXmIWvshc4k6eyTpxDWdOWEjBfldqxyLKsbAWoV6K0y0yhxDu_1aHqryEjhS7tPDz5a3xJymv-OA3Vj22wpIEz3IzfXqANckk7BIybM4wyMFDj3_AGaja8_4WeXTG6xuI61qa8P1tT2clfcJe9DmZ36b9kvIWsN9fZX/s270/dr-carol-brown-270x250.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="250" data-original-width="270" height="250" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhLEvE6vJG5ixuy5rFLzRH9wgXmIWvshc4k6eyTpxDWdOWEjBfldqxyLKsbAWoV6K0y0yhxDu_1aHqryEjhS7tPDz5a3xJymv-OA3Vj22wpIEz3IzfXqANckk7BIybM4wyMFDj3_AGaja8_4WeXTG6xuI61qa8P1tT2clfcJe9DmZ36b9kvIWsN9fZX/s1600/dr-carol-brown-270x250.jpg" width="270" /></a></div><br /></div><div dir="auto" style="text-align: start;"><b> </b></div></div><div class="x11i5rnm xat24cr x1mh8g0r x1vvkbs xtlvy1s x126k92a"><div style="text-align: center;"><h4><b>“Understanding how children learn is my passion. </b></h4></div><div style="text-align: center;"><h4><b> Cognitive training is the missing piece to the puzzle.”</b></h4></div><div dir="auto" style="text-align: start;"> </div></div><div style="text-align: left;"><p><span style="font-size: medium;">Carol is the executive director of Equipping Minds Brain Development Center and the author of Equipping Minds Cognitive Development Curriculum used for students and adults across the US and in 40 countries. Carol is a special needs consultant. </span></p></div><div style="text-align: left;"><p><span style="font-size: medium;"> </span></p></div><div style="text-align: left;"><p><span style="font-size: medium;">She has trained public, private, and homeschool educators, Toyota, UK College of Medicine, KY Vocational Rehabilitation, psychologist, occupational therapist, speech and language therapist, and higher education institutions. </span></p></div><div style="text-align: left;"><p><span style="font-size: medium;">She is trained in Feuerstein’s Instrumental Enrichment, cognitive developmental therapy, primitive reflex therapy, vision therapy, sound therapy, vestibular therapy, and mediated learning. Carol earned an Ed.D from Southern Baptist Theological Seminary, MA in Social Services from Southwestern Seminary, and BA in Rehabilitation Counseling from Marshall University. She is a contributing author in the Neuroscience and Christian Formation and Human Development: Equipping Minds with Cognitive Development.</span></p></div>Unknownnoreply@blogger.comtag:blogger.com,1999:blog-7400925395674842077.post-43311315962402530842023-01-11T13:52:00.003-06:002023-01-11T14:04:59.638-06:00<p><br /></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhct2LcgTNH6ZzqxkCvlcIDeH5z8dCV0r2mU30GezyFkaMZWADkSPpXGbQC6pS2CxMUtzyrsfRmMvJxdxO4cNw5n55hzarT17tRRj9weCmxL338dRF26y8B7H-ZMNVWeReAWVQh0MMuA7cABnvCDBLDV04PBAtQMjXGjLUlB7DFrTirygQChkSj_VDz/s2956/Uh%20oh.png" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2450" data-original-width="2956" height="530" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhct2LcgTNH6ZzqxkCvlcIDeH5z8dCV0r2mU30GezyFkaMZWADkSPpXGbQC6pS2CxMUtzyrsfRmMvJxdxO4cNw5n55hzarT17tRRj9weCmxL338dRF26y8B7H-ZMNVWeReAWVQh0MMuA7cABnvCDBLDV04PBAtQMjXGjLUlB7DFrTirygQChkSj_VDz/w640-h530/Uh%20oh.png" width="640" /></a></div><br /><p></p><h1 style="text-align: center;"><b> Register today!</b><br /></h1><p></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjEDFKxBGTQC4X00p26Mu95AlLR5z1pcfzp9blFTpMaNsZchwvySr-ZuK26Z510V9oAk7i6qDQr_WwjILPH9IBplwIXgl4P3FaKCyJQQZ96eCGIi8iTznmvfnudo-WUGNSvq3_-r4LeT05rfO5pg76w4Gpq5AJiZfLAD8pMnysGfz88LSBr--bbjCWO/s612/Image-1.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="612" data-original-width="612" height="118" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjEDFKxBGTQC4X00p26Mu95AlLR5z1pcfzp9blFTpMaNsZchwvySr-ZuK26Z510V9oAk7i6qDQr_WwjILPH9IBplwIXgl4P3FaKCyJQQZ96eCGIi8iTznmvfnudo-WUGNSvq3_-r4LeT05rfO5pg76w4Gpq5AJiZfLAD8pMnysGfz88LSBr--bbjCWO/w118-h118/Image-1.jpg" width="118" /></a></div><p></p>Unknownnoreply@blogger.comtag:blogger.com,1999:blog-7400925395674842077.post-33171543913910559442023-01-01T07:40:00.008-06:002023-01-01T11:34:23.322-06:00DSI Conference<h1 style="text-align: center;"><span style="color: #ce2e06;"><span style="font-size: x-large;"><a href="https://events.com/r/en_US/registration/down-syndrome-innovations-conference-columbia-february-876004?fbclid=IwAR0k2OALxLunmC5a_Et5Dgcpvm3TLEiObZAOx6rV8L13UFYtee_Kz2CDfUM">Early Bird Registration is Live!</a> </span> <br /></span></h1><br /><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;"><tbody><tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvUyvxomtZQ2Ye6InmeKZCent25217onEaLcynz4J5lvf1FkDw4jVO-9gMH2P1wBMxs15g1WnWinqz8IsGavFUsIdhx_UmjiomzB4GpS0CzlLDk0aMjtQ2YSF4ITVIA0wNNHcd1B2N0fO6giTS0_5BJTPqhhoXtqCJ0r-syF-opr_WXKvhver9RaIk/s992/Screen%20Shot%202022-12-31%20at%202.54.10%20PM.png" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="358" data-original-width="992" height="115" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvUyvxomtZQ2Ye6InmeKZCent25217onEaLcynz4J5lvf1FkDw4jVO-9gMH2P1wBMxs15g1WnWinqz8IsGavFUsIdhx_UmjiomzB4GpS0CzlLDk0aMjtQ2YSF4ITVIA0wNNHcd1B2N0fO6giTS0_5BJTPqhhoXtqCJ0r-syF-opr_WXKvhver9RaIk/s320/Screen%20Shot%202022-12-31%20at%202.54.10%20PM.png" width="320" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;"><br /></td></tr></tbody></table><h3 style="text-align: left;"><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgvZyKIekXB3I0h3b4XBgvuVHxm5xiUwQqKGFLE4OsBlzoKL7HyK_RV0OeTK5ebvk3uydgls9ttsx_3x6O4_dHgmWrhGvaIAxAxiMOp875f48JARJBl8oxn0A-PjyRepgITP977x98jK-EZXL3Az_juPC3wHKqzxxFiR_ASknXhl_k8xuKQ7VGllsZZ/s1162/Screen%20Shot%202022-12-31%20at%202.51.15%20PM.png" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="868" data-original-width="1162" height="478" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgvZyKIekXB3I0h3b4XBgvuVHxm5xiUwQqKGFLE4OsBlzoKL7HyK_RV0OeTK5ebvk3uydgls9ttsx_3x6O4_dHgmWrhGvaIAxAxiMOp875f48JARJBl8oxn0A-PjyRepgITP977x98jK-EZXL3Az_juPC3wHKqzxxFiR_ASknXhl_k8xuKQ7VGllsZZ/w640-h478/Screen%20Shot%202022-12-31%20at%202.51.15%20PM.png" width="640" /></a></div>Thank you to our sponsors:</h3><p><br /></p><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;"><tbody><tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9Haa2uvfVIVW9SpFUXXop9ipkEHok88T0R-kFTkp5Z1iNOilbWWF7xQFDGjsDH2ha-hJuKK92mG7ZKyVpxRLSWs_IZ3_UgciHqF6A3DSYnEgiwDn4eYjSh-2z6arppVxakzHEGCr6WIREcuK30beg0Ob-wI8_qGaxN-G4xQh3yYOKmiRLGi72qy8l/s1120/Screen%20Shot%202022-12-31%20at%203.45.16%20PM.png" imageanchor="1" style="margin-left: auto; 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margin-right: auto;"><img border="0" data-original-height="598" data-original-width="796" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhK8EmkVbJdFvBwLEcXT2CU_4FGkwqoSXIDrToBK2SWfA5f80-9ZclPgNGbGdWNrTRJwC2BoTbZuqAW1997b9RbWxhoRpwlPJFH-ltk_TgZVKrINbt3KWvcS-DaK3U9gr09MnUPql0d4r87CyPUXbH_fadR3xLPS61925p3iSzBBzf-v6Z715NIhwN-/w200-h150/Screen%20Shot%202022-12-31%20at%203.39.26%20PM.png" width="200" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;"><a href="https://www.doggydelightsbyallison.com">Doggy Delights by Allison</a></td></tr></tbody></table><p></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgW7FRv1czYxHvQPIx68XkVxI4RKzSvEoZnqxiIwjsegM6nIppY-gn1n3YyBdvICxYpOAnK3qQl_bGPJLOkUIlUNZANqmV9BUzKFqxqHOW1L8bjQZV6pGHaUo8S2eDscX1JfXgOW-4VEzlsIPcBrz_0_ciFUovRs43KGMDB2Qt4i4XkMOzSk6vd47FT/s1276/Screen%20Shot%202022-12-31%20at%203.09.26%20PM.png" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1276" data-original-width="1148" height="689" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgW7FRv1czYxHvQPIx68XkVxI4RKzSvEoZnqxiIwjsegM6nIppY-gn1n3YyBdvICxYpOAnK3qQl_bGPJLOkUIlUNZANqmV9BUzKFqxqHOW1L8bjQZV6pGHaUo8S2eDscX1JfXgOW-4VEzlsIPcBrz_0_ciFUovRs43KGMDB2Qt4i4XkMOzSk6vd47FT/w620-h689/Screen%20Shot%202022-12-31%20at%203.09.26%20PM.png" width="620" /></a></div><br /><span class="x4k7w5x x1h91t0o x1h9r5lt xv2umb2 x1beo9mf xaigb6o x12ejxvf x3igimt xarpa2k xedcshv x1lytzrv x1t2pt76 x7ja8zs x1qrby5j x1jfb8zj"><br /><span role="gridcell"><br /></span></span><p></p>Unknownnoreply@blogger.comtag:blogger.com,1999:blog-7400925395674842077.post-53497852017671248612023-01-01T07:11:00.002-06:002023-01-01T07:12:11.355-06:00Introducing Alternative Concepts to New Families!<p></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgT0iGy478nCL-MJpercJ0fNSh0A7JO1AzOzLboMrPBLtg-8W_GwBqzh8eETddKV1qp2P25ssMsqZS92_dhlcSDIf3cwa2FGNYVz56h8F6OWzb2BeMg31TzB8FoK678W3I5-SFungVvvQ2QcEHNlEhNDgJMrmR2R84wCToWLX-UDdQ5oV5fNSuriHgC/s612/IMG_4371.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="612" data-original-width="612" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgT0iGy478nCL-MJpercJ0fNSh0A7JO1AzOzLboMrPBLtg-8W_GwBqzh8eETddKV1qp2P25ssMsqZS92_dhlcSDIf3cwa2FGNYVz56h8F6OWzb2BeMg31TzB8FoK678W3I5-SFungVvvQ2QcEHNlEhNDgJMrmR2R84wCToWLX-UDdQ5oV5fNSuriHgC/s320/IMG_4371.JPG" width="320" /></a></div><br /> <p></p>Unknownnoreply@blogger.comtag:blogger.com,1999:blog-7400925395674842077.post-49401694734210281582022-10-30T15:42:00.001-05:002023-01-01T15:43:48.424-06:00Contact Us<div style="text-align: center;"><b><b><span style="font-size: large;"><br /></span></b></b></div><div style="text-align: center;"><b><b><span style="font-size: large;">We are thrilled you are here! 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</div>
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</div>
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</tbody></table>
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<span style="color: #666666;">September 2017</span></div>
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<div>
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<span style="color: #294b93;">Conference Speakers, Presentations & Deadlines</span></div>
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</td>
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</tbody></table>
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<div>
Doctors,
therapists, parents, educators, advocates, scientists, researchers and
loved ones gathered during the 2016 Innovations Conference.</div>
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</div>
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</tbody></table>
</div>
</td>
</tr>
</tbody></table>
<table border="0" cellpadding="0" cellspacing="0" class="galileo-ap-layout-editor" style="border-collapse: collapse; min-width: 100%; mso-table-lspace: 0pt; mso-table-rspace: 0pt; table-layout: fixed; width: 100%px;">
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<table align="center" border="0" cellpadding="0" cellspacing="0" style="border-collapse: collapse; height: 1px; min-width: 94%; mso-table-lspace: 0pt; mso-table-rspace: 0pt; table-layout: fixed; width: 94%;">
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</td>
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</tbody></table>
</td>
</tr>
</tbody></table>
</div>
</td>
</tr>
</tbody></table>
<table border="0" cellpadding="0" cellspacing="0" class="galileo-ap-layout-editor" style="border-collapse: collapse; min-width: 100%; mso-table-lspace: 0pt; mso-table-rspace: 0pt; table-layout: fixed; width: 100%px;">
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<span style="font-size: large;"><span style="color: #294b93; font-weight: bold;">Deadlines!</span></span></div>
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</div>
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</div>
</td>
</tr>
</tbody></table>
<table border="0" cellpadding="0" cellspacing="0" class="galileo-ap-layout-editor" style="border-collapse: collapse; min-width: 100%; mso-table-lspace: 0pt; mso-table-rspace: 0pt; table-layout: fixed; width: 100%px;">
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<table align="center" border="0" cellpadding="0" cellspacing="0" style="border-collapse: collapse; height: 1px; min-width: 94%; mso-table-lspace: 0pt; mso-table-rspace: 0pt; table-layout: fixed; width: 94%;">
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</tbody></table>
</td>
</tr>
</tbody></table>
</div>
</td>
</tr>
</tbody></table>
<table border="0" cellpadding="0" cellspacing="0" class="galileo-ap-layout-editor" style="border-collapse: collapse; min-width: 100%; mso-table-lspace: 0pt; mso-table-rspace: 0pt; table-layout: fixed; width: 100%px;">
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<span style="font-weight: bold;">September 28....</span> Early Bird Registration Ends</div>
<div align="center" style="text-align: center;">
<span style="font-weight: bold;">October 4</span>..... Meet & Greet Registration Ends</div>
<div align="center" style="text-align: center;">
<span style="font-weight: bold;">October 6</span>.... Hotel Registration Discount Ends</div>
</div>
</div>
</td>
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</div>
</td>
</tr>
</tbody></table>
<table border="0" cellpadding="0" cellspacing="0" class="galileo-ap-layout-editor" style="border-collapse: collapse; min-width: 100%; mso-table-lspace: 0pt; mso-table-rspace: 0pt; table-layout: fixed; width: 100%px;">
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<div class="gl-contains-button">
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<table bgcolor="#294B93" border="0" cellpadding="0" cellspacing="0" style="background: #294B93; border-collapse: collapse; border-radius: 0px; border-spacing: 0; border: none; min-width: initial; moz-border-radius: 0px; mso-table-lspace: 0pt; mso-table-rspace: 0pt; padding: 0; table-layout: fixed; width: initial;">
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<div>
<div class="MainTextFullWidth">
<a href="http://www.downsyndromeinnovations.com/register.html" style="color: white; font-family: Arial, Verdana, Helvetica, sans-serif; font-size: 14px; font-weight: bold; text-decoration: none;" target="_blank">Conference Registration</a></div>
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</td>
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</td>
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<table bgcolor="#294B93" border="0" cellpadding="0" cellspacing="0" style="background: #294B93; border-collapse: collapse; border-radius: 0px; border-spacing: 0; border: none; min-width: initial; moz-border-radius: 0px; mso-table-lspace: 0pt; mso-table-rspace: 0pt; padding: 0; table-layout: fixed; width: initial;">
<tbody>
<tr>
<td align="center" class="MainTextFullWidthTD" style="color: #1a75bb; font-family: Arial, Verdana, Helvetica, sans-serif; font-size: 14px; font-weight: bold; padding: 9px 15px 10px; text-decoration: none;" valign="top">
<div>
<div class="MainTextFullWidth">
<a href="https://res.windsurfercrs.com/ibe/details.aspx?Checkin=10/27/2017&Checkin_submit=10/27/2017&Checkout=10/29/2017&Checkout_submit=10/29/2017&requesttype=group&group=downsyndrome&pcode=VH05&Langid=1&nono=1" style="color: white; font-family: Arial, Verdana, Helvetica, sans-serif; font-size: 14px; font-weight: bold; text-decoration: none;" target="_blank">Hotel Registration</a></div>
</div>
</td>
</tr>
</tbody>
</table>
</td>
</tr>
</tbody></table>
</td>
</tr>
</tbody></table>
</div>
</td>
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</tbody></table>
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<table class="galileo-ap-content-editor" style="border-collapse: collapse; cursor: default; min-width: 100%; mso-table-lspace: 0pt; mso-table-rspace: 0pt; table-layout: fixed; width: 100%px;">
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<table align="center" border="0" cellpadding="0" cellspacing="0" style="border-collapse: collapse; height: 1px; min-width: 94%; mso-table-lspace: 0pt; mso-table-rspace: 0pt; table-layout: fixed; width: 94%;">
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</tbody></table>
</td>
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</tbody></table>
</div>
</td>
</tr>
</tbody></table>
<table border="0" cellpadding="0" cellspacing="0" class="galileo-ap-layout-editor" style="border-collapse: collapse; min-width: 100%; mso-table-lspace: 0pt; mso-table-rspace: 0pt; table-layout: fixed; width: 100%px;">
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<div class="gl-contains-text">
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<div>
</div>
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<div align="center" style="text-align: center;">
<span style="font-size: large;"><span style="color: #294b93; font-weight: bold;">Speakers and Topics</span></span></div>
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</div>
</td>
</tr>
</tbody></table>
</div>
</td>
</tr>
</tbody></table>
<table border="0" cellpadding="0" cellspacing="0" class="galileo-ap-layout-editor" style="border-collapse: collapse; min-width: 100%; mso-table-lspace: 0pt; mso-table-rspace: 0pt; table-layout: fixed; width: 100%px;">
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<table class="galileo-ap-content-editor" style="border-collapse: collapse; cursor: default; min-width: 100%; mso-table-lspace: 0pt; mso-table-rspace: 0pt; table-layout: fixed; width: 100%px;">
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<td align="center" class="divider-base divider-solid" style="padding: 9px 0px;" valign="top" width="100%">
<table align="center" border="0" cellpadding="0" cellspacing="0" style="border-collapse: collapse; height: 1px; min-width: 94%; mso-table-lspace: 0pt; mso-table-rspace: 0pt; table-layout: fixed; width: 94%;">
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<span style="font-size: 16px;">Mitochondrial Dysfunction and Inflammation/ </span></div>
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<span style="font-size: 16px;">Neuroinflammation in T21 and What to do About It</span></div>
<div align="center" style="text-align: center;">
<span style="font-weight: bold;">Norman Schwartz, MD</span><span style="color: #545454;"> </span></div>
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<span style="font-size: 16px;">My Life</span></div>
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<span style="font-weight: bold;">Lydia Winans, student and self-advocate</span></div>
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<span style="font-size: 16px;">Risk Reduction for Leukemia in those with Down Syndrome</span></div>
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<span style="font-weight: bold;">Laurette Janak</span></div>
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<span style="font-size: 16px;">Brilliant Learning Tips for Students with T21</span></div>
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<span style="font-weight: bold;">JoQueta Handy, PhD, SLP-CCC</span></div>
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<span style="font-size: 16px;">Hope Unexpectedly Awaits in Sound: Tomatis Listening Therapy</span></div>
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<span style="font-weight: bold;">Ellen Young, PhD, MA, RCTC</span></div>
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<span style="font-size: 16px;">Application
of Near-infrared LEDs to Improve Cognition ...and Improve Language...
Can Photobiomodulation Strengthen Connections in the Default Mode
Network?</span></div>
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<span style="font-weight: bold;">Margaret A. Naeser, Ph.D</span></div>
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<span style="font-size: 16px;">Cognitive Improvements with Alzheimer's Disease/Dementia </span></div>
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<span style="font-size: 16px;">Using Low Level Light Therapy</span></div>
<div align="center" style="text-align: center;">
<span style="font-weight: bold;">Anita Saltmarche, PhD</span></div>
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<span style="font-weight: bold;">....</span></div>
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<span style="font-size: 16px;">Reflex Integration Using Low Level Light Therapy</span></div>
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<span style="font-weight: bold;">Bonnie Brandes, M.Ed</span></div>
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<span style="font-weight: bold;">....</span></div>
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<span style="font-size: 16px;">Neuro-developmental Therapy and SOI (Structure of Intellect) </span></div>
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<span style="font-size: 16px;">Intelligence Can Be Learned</span></div>
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<span style="font-weight: bold;">Linda Kane, M.CND</span></div>
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<span style="font-weight: bold;">....</span></div>
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<span style="font-size: 16px;">Growth Hormone Deficiency in the T21 Population</span></div>
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<span style="font-weight: bold;">Richard Levy, MD</span></div>
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<span style="font-weight: bold;">....</span></div>
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<span style="font-size: 16px;">The Science Behind Reducing Oxalate in those with Down Syndrome</span></div>
<div align="center" style="text-align: center;">
<span style="font-weight: bold;">Susan Costen Owens, BS, MAIS</span></div>
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<span style="font-weight: bold;">....</span></div>
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<span style="font-size: 16px;">Functional Nutrition Strategies for Enhancing Digestion </span></div>
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<span style="font-size: 16px;">and Preventing Neurodegenerative Decline</span></div>
<div align="center" style="text-align: center;">
<span style="font-weight: bold;">Gail Clayton</span><span style="color: #545454; font-weight: bold;">, R.Ph, MS, CNS</span></div>
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<span style="font-weight: bold;">....</span></div>
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<span style="font-size: 16px;">The Importance of the C Cleanse and </span></div>
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<span style="font-size: 16px;">Use of Functional Predictive Biomarkers in T21</span></div>
<div align="center" style="text-align: center;">
<span style="font-weight: bold;">Russell Jaffe, MD, PhD</span></div>
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<span style="font-size: 16px;">Sleep, Circadian and Stem Cell Renewal Factors </span></div>
<div align="center" style="text-align: center;">
<span style="font-size: 16px;">in the Learning Disability seen in those with Down Syndrome</span></div>
<div align="center" style="text-align: center;">
<span style="font-weight: bold;">Craig Heller, PhD</span></div>
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<a href="http://www.downsyndromeinnovations.com/" style="color: #1a75bb; font-style: normal; font-weight: bold; text-decoration: underline;" target="_blank">Down Syndrome Innovations Conference</a> </div>
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Unknownnoreply@blogger.comtag:blogger.com,1999:blog-7400925395674842077.post-4418684095047887422016-06-20T13:38:00.001-05:002016-06-20T13:52:55.272-05:00Two DSI Conferences for the Price of One!<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<span style="color: #a64d79;"><b><span style="font-size: large;"><img border="0" height="298" src="https://2.bp.blogspot.com/-pIr2PNcyVcE/V2g6TVl0wsI/AAAAAAAAAIM/tu8WnQbNvaYE85TN_Q9VUo-FAZSsNzAFwCLcB/s400/free%2Baccess2.png" width="400" /></span></b></span></div>
<br />
<div style="text-align: center;">
<span style="font-size: small;"><span style="color: #134f5c;"><b><span style="color: #351c75;"><a href="http://www.downsyndromeinnovations.com/" target="_blank"><span style="font-size: large;">Register here.</span></a></span></b></span></span><br />
<span style="font-size: small;"><span style="color: #134f5c;"><b><span style="color: #351c75;"><span style="font-size: large;">September 16-17, 2016</span></span></b></span></span><br />
<span style="font-size: small;"><span style="color: #134f5c;"><b><span style="color: #351c75;"><span style="font-size: large;">Little Rock, Arkansas </span></span> </b></span></span><br />
<br />
<span style="color: purple;"><span style="font-size: small;"><span style="color: #134f5c;"><b>Registration for the 2016 Down Syndrome Innovations Conference already includes free access to the 2016 videos, so this is a great bonus!</b></span></span></span><br />
<span style="color: purple;"><br /></span>
<span style="font-size: small;"><span style="color: #134f5c;"><span style="color: purple;">Note: Several speakers will include information about Green Tea Extract in the Down syndrome population in their presentations at the conference.</span><b> </b></span></span></div>
<b><br /></b>
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g"><b>These presentations are part of the free 2015 video access:</b></span></span></span><br />
<blockquote class="tr_bq">
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">EGCG in the Down Syndrome Population</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">John Starbuck, PhD</span></span></span> </blockquote>
<blockquote class="tr_bq">
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Thinking About Trisomy 21 – Towards a Best Practices Approach</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Norman Schwartz, MD</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Hypothyroidism and Down Syndrome</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Erica Peirson, ND</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">NeuroMovement: Turning the Child with Down Syndrome into a Potent Learner</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Anat Baniel, ABM creator</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Maternal Choline/Neurogenesis/Therapeutic Intervention for Basic Brain Cognition Support</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Barbara Strupp, PhD</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Oxidative
Stress and Epigenetic Alterations in Down Syndrome: Targeted
Nutritional Intervention Trail at Arkansas Children’s Hospital</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">S. Jill James, PhD</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Dietary Targeting of RCAN1 and Chromosome 21 Genes to Treat the Down Syndrome Population</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Dana Crawford, PhD</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Molecular
Mechanisms Engaged in Brain Prior to and Following Development of
Alzheimer’s Disease Neuropathology and Dementia in Down Syndrome</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">D. Allan Butterfield, PhD</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Mitochrondial Dysfunction and Oxidative Stress in the Down Syndrome Population</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Jorge A. Busciglio, PhD</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Treatment Strategies for Mitochondrial Dysfunction</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Richard Frye, MD PhD</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Healthy Digestion-Healthy Microbiome: What to Test, What Tests Mean and What to Do</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Russell Jaffe, MD Phd FACN</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Oral Placement Therapy Techniques for Better Speech</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Monica Purdy, MA CCC-SLP</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Optimized Nutrition is Essential for those with Trisomy 21. Where’s the Debate?</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Kent MacLeod, BSc Pharmacology</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">The Baby-Led Weaning Approach: An Excellent Option to Assist Babies with Down Syndrome in Transitioning to Solid Foods</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Jill Rabin, MS CCC-SLP</span></span></span></blockquote>
<blockquote class="tr_bq">
<span style="color: #20124d;"><b>Gluten Free</b></span><br />
<span style="color: #20124d;">Paula Dempsey, Small Business Owner and Grandmother <br />to child w/Celiac</span></blockquote>
<blockquote class="tr_bq">
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Balancing Minerals in the Down Syndrome Population</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Morley Robbins, MBA CHC</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Developmental and Behavioral Consultants</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Alison Wimmer, BS Neurodevelopmentalist</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Early Dental Intervention to Improve Airway Size and to Correct Oral Rest Posture</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">James Bieneman, DDS</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Small Intestinal Bacterial Overgrowth</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Erica Peirson, ND</span></span></span><br />
<span style="color: #20124d;"><br /></span>
<span style="color: #20124d;"><b><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">My Teen Life: Living with Trisomy 21</span></span></b></span><br />
<span style="color: #20124d;"><span data-ft="{"tn":"K"}"><span class="UFICommentBody _1n4g">Lydia Winans, student</span></span></span></blockquote>
Unknownnoreply@blogger.comtag:blogger.com,1999:blog-7400925395674842077.post-55394179756488629832016-04-21T14:35:00.003-05:002016-04-21T14:40:39.390-05:00Down Syndrome Innovations Conference 2016<div dir="ltr">
<div class="separator" style="clear: both; text-align: center;">
<a href="https://2.bp.blogspot.com/-HNM6CH1wY_o/VxkrvRbkPzI/AAAAAAAAAHs/LDOHixsbSdsqHlWQ5Vssg7ymnAwNEwIHgCLcB/s1600/dsi_banner_image1%2B%25281%2529%25284%2529-1.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="170" src="https://2.bp.blogspot.com/-HNM6CH1wY_o/VxkrvRbkPzI/AAAAAAAAAHs/LDOHixsbSdsqHlWQ5Vssg7ymnAwNEwIHgCLcB/s400/dsi_banner_image1%2B%25281%2529%25284%2529-1.jpg" width="400" /></a></div>
<div style="text-align: center;">
<br />
<span style="font-family: "verdana" , sans-serif;"><span style="color: #24678d;"><b>Sept. 16-17, 2016<br />Statehouse Convention Center</b></span></span><br />
<span style="font-family: "verdana" , sans-serif;"><span style="color: #24678d;"><b>Little Rock, Arkansas</b></span></span></div>
<span style="font-family: "verdana" , sans-serif;"><span style="color: #24678d;"><b> </b></span> </span><br />
<div style="text-align: center;">
<span style="color: #0b5394;"><b><span style="font-family: "verdana" , sans-serif;"><a href="http://downsyndromeinnovations.com/" target="_blank">Early Bird Registration is now open. Secure your spot today!</a> </span></b></span></div>
<br />
<span style="font-family: "verdana" , sans-serif;">We are excited to share this one-of-a-kind opportunity to hear
dynamic researchers, physicians, therapists and advocates present
cutting edge translational medical research and interventions to improve
the health, cognition, behavior and development of individuals with
Down syndrome.</span><br />
<span style="font-family: "verdana" , sans-serif;"><br /></span>
<span style="font-family: "verdana" , sans-serif;">Make new friends and connections. Network with
other attendees who share the common goal of exploring ways to enrich
the lives of individuals with Down syndrome. Be able to speak face to
face with expert vendors of supplements, quality service providers and
try out innovative products for yourself.</span><br />
<span style="font-family: "verdana" , sans-serif;"><br /></span>
<span style="font-family: "verdana" , sans-serif;"><span style="font-family: "arial" , "helvetica" , sans-serif;">Check out our <a href="http://downsyndromeinnovations.com/" target="_blank">conference website</a> </span>for details.</span><br />
<span style="font-family: "verdana" , sans-serif;"><br /></span>
<span style="font-family: "verdana" , sans-serif;">Feel free to join us on <a href="https://www.facebook.com/events/614192605404796/" target="_blank">2016 Down Syndrome Innovations Conference Event Page</a></span><br />
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Unknownnoreply@blogger.comtag:blogger.com,1999:blog-7400925395674842077.post-46989340294536881702015-06-30T08:08:00.000-05:002015-12-05T08:20:43.609-06:00Down Syndrome Innovations Conference at Arkansas Children's Hospital<div style="text-align: center;">
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<span style="font-size: large;"> Arkansas Children's Hospital and Down Syndrome OPTIONs bring you therapeutic ideas, educational strategies and research
supporting translational medical interventions that can improve the
symptoms seen in those with Trisomy 21.</span><br />
<span style="font-size: large;">September 11-13, 2015 </span><br />
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<span style="font-size: large;"><a href="http://www.brownpapertickets.com/event/1740255" target="_blank">Register today!</a> </span></div>
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<a href="http://4.bp.blogspot.com/-8ijleMRjLxY/VZKT7wTAXCI/AAAAAAAAAGo/VIyQG3J7IVQ/s1600/unnamed.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="200" src="http://4.bp.blogspot.com/-8ijleMRjLxY/VZKT7wTAXCI/AAAAAAAAAGo/VIyQG3J7IVQ/s200/unnamed.jpg" width="198" /></a><b>Friday, September 11, 2015</b><br />
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<b> Day 1</b> supports physicians and other professionals* <i><i> </i></i><br />
<i><i> Continental</i> breakfast and lunch included.</i><br />
<blockquote class="tr_bq">
<b> Meet and Greet</b> in the evening with appetizers.<br />
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<b>Art Gallery</b> featuring adult artist with T21, Billy Spillman.</blockquote>
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<b>Saturday, September 12, 2015</b><br />
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<b> Day 2 </b>gives parents, advocates, and caregivers* more knowledge and better tools to help individuals with Trisomy 21. <i>Continental breakfast and lunch included.</i><br />
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<i> *Both days of the conference will be open for parents and professionals to attend. </i><br />
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<b>Sunday, September 13, 2015</b><br />
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<b> Day 3 </b>Family day!<br />
Join attendees at either <a href="http://www.littlerockzoo.com/">Little Rock Zoo</a> or the <a href="https://www.museumofdiscovery.org/">Donald W. Reynolds Science Center</a><br />
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To get the group rate, email kerrinelson70(a)gmail.com to tell us
which one you want to attend and how many adults and children (indicate
ages) will come. <br />
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<i>Seize this opportunity to make life-long connections with caregivers, practitioners and researchers!</i><b><br /></b>
<b> </b><br />
<b>Expert Presenters on Must-Hear T21 Topics </b><br />
<ul>
<li><b>Dana Crawford</b>, Ph.D. -- Dietary Targeting of RCAN1 and Chromosome 21 Genes to Treat the Down Syndrome Population </li>
<li><b>Norman Schwartz</b>, M.D. -- Thinking About Trisomy 21- Towards a Best Practices Approach </li>
<li><b>Barbara Strupp</b>, Ph.D. -- Maternal Choline/Neurogenesis/Therapeutic Intervention for Basic Brain-Cognition support </li>
<li><b>D. Allan Butterfield</b>, Ph.D. -- Molecular Mechanisms Engaged in Brain Prior to and Following
Development of Alzheimer's Disease Neuropathology and Dementia in Down
Syndrome </li>
<li><b>Anat Baniel</b> -- The Therapy of the Anat Baniel Method (SM) NeuroMovementApproach® </li>
<li><b>S. Jill James, Ph.D</b>. -- Oxidative Stress and Epigenetic Alterations in Down Syndrome: Targeted
Nutritional Intervention Trial at Arkansas Children's Hospital </li>
<li><b>Richard Frye</b>, M.D., Ph.D. -- Treatment Strategies for Mitochondrial Dysfunction </li>
<li><b>Alison Wimmer</b> -- Educational Strategies: Change Your Perception of dis-Abilities</li>
<li><b>Monica Purdy</b>, MA, CCC-SLP -- Oral Placement Therapy Techniques for Better Speech </li>
<li><b>Erica Peirson</b>, N.D. -- Small Intestinal Bacterial Overgrowth </li>
<li><b>Morley Robbins</b>, MBA, CHC -- Balancing Minerals in the Down Syndrome Population</li>
<li><b>Jill Rabin</b>, M.S., CCC-SLP -- The Baby-Led Weaning Approach: An Excellent Option to Assist Babies with Down Syndrome in Transitioning to Solid Foods </li>
<li><b>Lydia Winans</b> -- The Life and Times of a Teen with T21 </li>
<li><b>Kent MacLeod </b>-- Optimized Nutrition is Essential for those with Trisomy 21. Where's the Debate? </li>
<li><b>Russell Jaffe</b>, M.D., Ph.D., FACN -- Healthy Digestion = Healthy Microbiome: What to Test, What Tests Mean and What to Do</li>
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<b>Child Care</b><br />
<br />
Register
now for child care. We will be providing qualified special needs care
givers to make sure your little ones are safe and having fun. There will
be a 2:1 ratio for kids w/special needs and 4:1 ratio for typical
children, which is reflected in the price.<br />
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<b>Hotel Reservations</b><br />
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We have rooms blocked off at <a href="http://www.reservationcounter.com/hotels/show/431400/residence-inn-little-rock-downtown/?TID=o9IdDxRu%7Cpcrid%7C6161045265&utm_source=bing&utm_medium=cpc&utm_term=+residence%20+inn%20+little%20+rock&utm_campaign=New%20Additions%208-15-13&mm_campaign=61e23501c3a7666376c173fa44c75e69&keyword=+residence%20+inn%20+little%20+rock&hotelid=431400">Residence Inn Little Rock Downtown</a>. Let them know you are with the Down Syndrome Innovations Conference.<br />
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<a href="http://www.archildrens.org/documents/campusmap2015.pdf">View map of Arkansas Children's Hospital.</a><br />
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<b>Speaker Schedule</b><br />
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<b>Friday, September 11, 2015</b><br />
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Norman Schwartz, MD<br />
Barbara Strupp, PhD<br />
Anat Baniel<br />
Jill James, PhD<br />
Dana Crawford, PhD<br />
A.S.P Van Trotsenburg, MD, PhD<br />
Jorge Busciglio, PhD<br />
Alan Butterfield, PhD<br />
Richard Frye, MD, PhD<br />
Russell Jaffe, MD, PhD, FACN<br />
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<b>Saturday, September 12, 2015</b><br />
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Alison Wimmer<br />
Raphael Kellman, MD<br />
Louis Silva, MD, MPH<br />
Morley Robbins, MBA, CHC<br />
Monica Purdy, MA, CCC-SLP<br />
Jill Rabin, MS, CCC-SLP<br />
James Bieneman, DDS<br />
Erica Peirson, ND<br />
Kent MacLeod<br />
Neus Martinez Abadias, PhD<br />
Lydia Winans</div>
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<b>Please support our <a href="http://www.downsyndromeoptions.org/p/about-us.html" target="_blank">mission</a>! </b><br />
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<b>Donate to Down Syndrome OPTIONs today!</b></div>
<br />Unknownnoreply@blogger.comtag:blogger.com,1999:blog-7400925395674842077.post-14550167048301563772015-05-04T20:10:00.000-05:002015-05-04T23:48:59.123-05:00International Conference of the Trisomy 21 Research Society <div style="text-align: center;">
<b><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">The time has come, DS Community! </span></span></b></div>
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<b><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"> The first annual <a href="http://www.t21rs-international-conference2015.com/events.php?IDManif=894&IDModule=71&IDRub=1646" target="_blank">International Conference of the Trisomy 21 Research Society</a> is June 4-7 2015 in Paris. </span></span></b></div>
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<b><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><br />
3 1/2 days packed from 8:30 AM to 7:15 PM with researchers, clinicians
and DS organizers all sharing up-to-the-minute research. </span></span></b></div>
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<b><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"> DS OPTIONs needs to be there to represent you and bring back all the info we can gather...</span></span></b><br />
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<b><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"> And share...</span></span></b><br />
<b><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"> Dr. Erica Peirson's poster presentation on Down Syndrome and Hypothyroidism has been accepted!</span></span></b><br />
<b><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"> Wouldn't you love for the DS world to hear about the importance of proper thyroid management in our kids?</span></span></b><br />
<b><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"> And possibly spark interest in a research study assessing reverse T3 in young ones with T21?</span></span></b><br />
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<b><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"> Please help Dr. Erica Peirson and Andi Durkin, President of DS OPTIONs, represent you in Paris!</span></span></b><br />
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<b><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"> Even the smallest donation can make a big difference.</span></span></b> <b><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"></span></span></b><br />
<b><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">On mobile devices, click "web version" for donate button.</span></span></b></div>
Unknownnoreply@blogger.comtag:blogger.com,1999:blog-7400925395674842077.post-2605049091631022822015-04-15T11:35:00.003-05:002015-04-15T12:33:23.087-05:00Down Syndrome Conference in Chicago May 21, 2015<div class="separator" style="clear: both; text-align: center;">
<a href="http://4.bp.blogspot.com/-f9rUF_V-O8M/VS6gIfBk8OI/AAAAAAAAAGI/KaX74XzjCDo/s1600/ao_2015_conf_banner.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://4.bp.blogspot.com/-f9rUF_V-O8M/VS6gIfBk8OI/AAAAAAAAAGI/KaX74XzjCDo/s1600/ao_2015_conf_banner.png" /></a></div>
<span style="font-size: small;"><span title=" Down - Down Syndrome"><br /></span></span>
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<span style="color: #444444; font-size: small;"><span style="font-size: large;"><b><a href="http://www.autismone.org/content/conference-membership-registration" target="_blank">Register Today</a></b> </span><br />
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<span style="font-size: small;"><span style="background-color: white;">We </span>look forward to meeting up with you at the Down Syndrome OPTIONs booth!</span><br />
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<span style="font-size: small;">Catch up on the latest research and learn tips to best care for your loved one with T21 from experts. </span></div>
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<i>** Promote Better Speech ** Proper Thyroid Treatment ** Innovative Educational Tips ** Understand Methylation ** Zinc and DS Connection ** Anxiety and Adrenal Link ** Testing and Solutions for Digestive Issues **</i></div>
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<b><span style="font-size: small;"><span title=" Down - Down Syndrome">Here are the in depth topics and expert speakers scheduled for the Down Syndrome Track in Chicago, </span><span title=" Down - Down Syndrome"><span class="aBn" data-term="goog_1064414338" tabindex="0"><span class="aQJ">Thursday, May 21, 2015</span></span>:</span></span></b><br />
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<span style="font-size: small;"><br /></span>
<span style="font-size: small;"> <b><a alt="Gemiini&amp;#039;s Discrete Video Modeling for Down Syndrome -- Dramatic gains seen in research and in practice." href="http://www.autismone.org/content/gemiinis-discrete-video-modeling-down-syndrome-dramatic-gains-seen-research-and-practice" target="_blank" title="Gemiini&amp;#039;s Discrete Video Modeling for Down Syndrome -- Dramatic gains seen in research and in practice.">Gemiini's Discrete Video Modeling for Down Syndrome -- Dramatic gains seen in research and in practice.</a></b><br />Laura Kasbar<br /><br /><a href="https://www.blogger.com/null" name="14c0b9ba1dbda380_14c043881f8619ad_addressing-the-hypothalamicpituitaryadrenal-axis-using-an-integrative-approach-in-ds"></a><b><a alt="Addressing the Hypothalamic/Pituitary/Adrenal Axis Using an Integrative Approach in DS" href="http://www.autismone.org/content/addressing-hypothalamicpituitaryadrenal-axis-using-integrative-approach-ds" target="_blank" title="Addressing the Hypothalamic/Pituitary/Adrenal Axis Using an Integrative Approach in DS">Addressing the Hypothalamic/Pituitary/Adrenal Axis Using an Integrative Approach in DS</a></b><br />Anju Usman, MD, FAAFP, ABIHM, FMAPS
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<a href="https://www.blogger.com/null" name="14c0b9ba1dbda380_14c043881f8619ad_thyroid-and-biomedical-basics-where-to-begin"></a><b><a alt="Thyroid and Biomedical Basics: Where to begin" href="http://www.autismone.org/content/thyroid-and-biomedical-basics-where-begin" target="_blank" title="Thyroid and Biomedical Basics: Where to begin">Thyroid and Biomedical Basics: Where to begin</a></b><br />Norman Schwartz, MD</span>
<span style="font-size: small;"></span><br />
<span style="font-size: small;"><br /><a href="https://www.blogger.com/null" name="14c0b9ba1dbda380_14c043881f8619ad_-essential-steps-to-maximize-potential-in-the-child-with-down-syndrome"></a><b><a alt="7 Essential Steps to Maximize Potential in the Child with Down Syndrome" href="http://www.autismone.org/content/7-essential-steps-maximize-potential-child-down-syndrome" target="_blank" title="7 Essential Steps to Maximize Potential in the Child with Down Syndrome">Seven Essential Steps to Maximize Educational Potential in the Child with Down Syndrome</a></b><br />JoQueta Handy, MS, CCC-SLP</span>
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<span style="font-size: small;"><br /></span>
<span style="font-size: small;">
<a href="https://www.blogger.com/null" name="14c0b9ba1dbda380_14c043881f8619ad_redox-and-methylation-status-in-down-syndrome"></a><b><a alt="Redox and Methylation Status in Down Syndrome" href="http://www.autismone.org/content/redox-and-methylation-status-down-syndrome" target="_blank" title="Redox and Methylation Status in Down Syndrome">Redox and Methylation Status in Down Syndrome</a></b><br />Richard C. Deth, PhD </span>
<span style="font-size: small;"></span><br />
<span style="font-size: small;"><br /><a href="https://www.blogger.com/null" name="14c0b9ba1dbda380_14c043881f8619ad_healthy-digestion--healthy-microbiome--what-to-test-what-tests-mean-and-what-to-do"></a><b><a alt="Healthy digestion = healthy microbiome: What to test, what tests mean, and what to do." href="http://www.autismone.org/content/healthy-digestion-healthy-microbiome-what-test-what-tests-mean-and-what-do" target="_blank" title="Healthy digestion = healthy microbiome: What to test, what tests mean, and what to do.">Healthy digestion = healthy microbiome: What to test, what tests mean, and what to do.</a></b><br />Russell Jaffe
, MD, PhD</span> <span style="font-size: small;"></span><br />
<span style="font-size: small;"><br /></span>
<span style="font-size: small;"><b><a alt="Pyroluria: Links to Down syndrome and autism" href="http://www.autismone.org/content/pyroluria-links-down-syndrome-and-autism" target="_blank" title="Pyroluria: Links to Down syndrome and autism">Pyroluria: Links to Down syndrome and autism</a></b><br />Erica Peirson, ND</span><br />
<span style="font-size: small;"><br /></span><span style="font-size: small;"></span>
<span style="font-size: small;"><span style="color: #888888;"><br /></span><span style="color: #888888;"><a href="http://www.downsyndromeoptions.org/p/optimizing-health-for-individuals-with.html" target="_blank">Click to watch past years' videos.</a><b> </b></span></span><br />
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<span style="font-size: small;"><br /> Childcare is available, please <a href="http://www.autismone.com/Childcare-Autismone-Conference-2015" target="_blank">click</a> for details.</span></div>
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Unknownnoreply@blogger.comtag:blogger.com,1999:blog-7400925395674842077.post-25095079098984650242015-02-14T15:56:00.003-06:002023-01-01T16:16:40.432-06:00Frequently Asked Questions<br />
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<h4 style="text-align: left;"><a href="https://www.blogger.com/blogger.g?blogID=7400925395674842077" name="n1"><b>What is Down syndrome?</b></a></h4>
<span data-mce-style="font-size: medium;" style="font-size: small;">Down syndrome is a genetic condition that appears in one of every 691 live births. It is the most common chromosomal disorder and can cause delays in physical and intellectual development. Individuals with DS have 47 chromosomes instead of the typical 46. This unusual cell division happens immediately at conception. Neither race, nationality, religion nor socioeconomic status influences the rate of occurrence of DS.</span><br />
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<h4 style="text-align: left;"><a href="https://www.blogger.com/blogger.g?blogID=7400925395674842077" name="n2"><b>What are the three types of Down syndrome?</b></a></h4>
<span data-mce-style="font-size: medium;" style="font-size: small;">The most common form of DS is known as Trisomy 21 (T21), which accounts for 95% of cases. The remaining 5% are due to conditions called mosaicism and Robertsonian translocation. Mosaic DS results when some cells in the body are typical while others have T21. Translocation occurs when part of chromosome 21 breaks off during cell division and attaches to another chromosome. The presence of this extra part of chromosome 21 causes some characteristics of DS. Although a person with a translocation may appear physically typical, he or she has a greater chance of having a child with DS.</span><br />
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<h4 style="text-align: left;"><b><span data-mce-style="font-size: medium;" style="font-size: small;"><a href="https://www.blogger.com/blogger.g?blogID=7400925395674842077" name="n3">What options do people with T21 have?</a></span></b></h4>
<span data-mce-style="font-size: medium;" style="font-size: small;">Through medical strategies, neurodevelopmental exercises and biomedical intervention, the options for people with T21 is growing and evolving every day. Exciting new research helps us understand and uncover different ways to address the symptoms people with T21 have. And, since these individuals have similarities to those with Alzheimer's Disease, scientists have taken a renewed interest in finding treatment for dementia in both populations. Researchers are working to improve, correct or prevent many of the problems associated with the diagnosis.<br />According to the National Down Syndrome Society's website, "Scientists now feel strongly that it will be possible to improve, correct or prevent many of the problems associated with Down syndrome in the future." </span><br />
Some people believe that the effects of T21 are just a fate that you accept. But, according to an article in the <a href="http://www.jpands.org/vol19no1/baggot.pdf">spring issue of the Journal of American Physicians and Surgeons</a>, "Genetic diseases [such as Down syndrome] are generally thought to be untreatable, but the underlying mechanisms are biochemical and thus can possibly be modified." And t<a href="http://www.newscientist.com/article/mg20928004.500-protein-dose-reverses-learning-problems-in-downs-mice.html">his study</a> states that<span data-mce-style="font-size: medium;" style="font-size: small;"> "Learning disabilities and mental retardations that were considered permanent are treatable." </span>Either way you look at it, there are a wide variety of options which can be very helpful, depending on each individual. Some options may lead to great improvement and others may have little or no effect on your child. How can you figure out what works for your child? Participation in <a data-mce-href="http://autism360.org/Autism360/Markup/Site/Default.aspx" href="http://autism360.org/Autism360/Markup/Site/Default.aspx" target="_blank" title="Autism360">Autism360</a> may help.<br />
<span data-mce-style="font-size: medium;" style="font-size: small;"><a data-mce-href="http://autism360.org/Autism360/Markup/Site/Default.aspx" href="http://autism360.org/Autism360/Markup/Site/Default.aspx" target="_blank" title="Autism360">Autism360</a> is free database that was created to allow parents of children with Autism share information with each other on what is working or not working for their child. Parents have found this tool so valuable, that families with children with T21 are using it as well. You simply share information about your child in a secure, anonymous way and then you can compare your information with other families. The information includes your child's surgeries, therapies, symptoms, strengths, supplement/medicine list. The more people who use this database, the better. Please consider investing a small amount of time to participate. It's very interesting what you may learn about your child! Let us know if you have any questions on how to use it.</span><br />
<a class="mceItemAnchor" href="http://www.blogger.com/blogger.g?blogID=7400925395674842077" name="4"></a><br />
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<h4 style="text-align: left;"><span data-mce-style="font-size: medium;" style="font-size: small;"><b><a href="http://www.blogger.com/blogger.g?blogID=7400925395674842077" name="n4">Where can I connect with other families who are searching for answers?</a></b></span></h4>
<ul>
<li><span data-mce-style="font-size: medium;" style="font-size: small;">For parents with a <b>prenatal diagnosis</b> or a baby under a year old, you can join the Facebook group called <a href="https://www.facebook.com/groups/663667837045534/" target="_blank">Down Syndrome Baby Steps</a> for support through the first year. </span></li>
<li><span data-mce-style="font-size: medium;" style="font-size: small;">For parents/caregivers for individuals with Down syndrome, join the Facebook group <b><a href="https://www.facebook.com/groups/222460274602320/" target="_blank">Unlimited Potential,</a> </b>which focuses on neurodevelopmental therapy and the<b> Trisomy 21 Nutrition and Supplementation Group</b>. </span>Please let us know if you want to join so we can add you.</li>
<li><span data-mce-style="font-size: medium;" style="font-size: small;">For parents with babies and young children with Down syndrome, join the online group <a data-mce-href="http://community.babycenter.com/groups/a6729133/unlimited_potential" href="http://community.babycenter.com/groups/a6729133/unlimited_potential" target="_blank" title="Unlimited Potential Parent Group"><b>Unlimited Potential Parent Group</b></a>.</span></li><li>For parents with family members with the dual diagnosis of Down syndrome and autism spectrum disorder, join the<b> <a data-mce-href="http://groups.yahoo.com/group/DSAofLouisville/" href="http://groups.yahoo.com/group/DSAofLouisville/">DSA of Louisville</a> </b>to learn about IEPs, etc. For putting together a plan of action including biomedical intervention, join the yahoo group called <b><a data-mce-href="http://health.groups.yahoo.com/group/dsautrecovery" href="http://health.groups.yahoo.com/group/dsautrecovery" target="_blank">DS-Aut Recovery</a></b>.</li>
<li>For <b>Australian families</b> with a child with Down syndrome, there's a Facebook group that's just for you! If you want to join, contact them <a href="https://www.facebook.com/NaturalTherapiesForKids?ref=settings" target="_blank">at their page</a>.</li>
<li>For <b>UK families</b> with a child with Down's syndrome, there's a Facebook group called <a href="https://www.facebook.com/groups/717243521642671/" target="_blank"><b>Down's Syndrome Proactive Parents UK</b></a>. Please let us know if you want to join so we can add you.</li>
<li>Para <b>las familias que hablan español</b>, hay un grupo de FB <a href="https://www.facebook.com/groups/1442452009377722/" target="_blank">llamado Padres proactivos párrafo Síndrome de Down</a>.</li>
<li>Para <b>as famílias que falam português</b>, há um grupo chamado FB <a href="https://www.facebook.com/groups/1520877498148068/" target="_blank">21 A Trissomia do Amor</a>. Este grupo discute uma ampla gama de tópicos, incluindo supplemenation para indivíduos com síndrome de Down. Para perguntas específicas sobre tais terapias alternativas, você pode marcar "DS Daytoday".</li>
<li><b>Colorado Families</b>, there's a proactive Facebook group just for you to share local resources. <a class="profileLink" data-hovercard="/ajax/hovercard/group.php?id=297811473747318" href="https://www.facebook.com/groups/297811473747318/">https://www.facebook.com/groups/297811473747318/</a> </li>
</ul>
</div>
<h4 style="text-align: left;"><span data-mce-style="font-size: medium;" style="font-size: small;"><b><a href="https://www.blogger.com/blogger.g?blogID=7400925395674842077" name="n5">What family blogs support a proactive approach to T21?</a></b></span></h4>
<ul>
<li><span data-mce-style="font-size: medium;" style="font-size: small;"><b><a data-mce-href="http://dsdaytoday.blogspot.com/p/welcome-to-ds-day-to-day-guide.html" href="http://dsdaytoday.blogspot.com/p/welcome-to-ds-day-to-day-guide.html" target="_blank">Down Syndrome: A Day to Day Guide</a></b></span></li>
<li><span data-mce-style="font-size: medium;" style="font-size: small;"><b><a data-mce-href="http://gotdownsyndrome.blogspot.com/2010/01/nutrivene-d-what-we-saw.html" href="http://gotdownsyndrome.blogspot.com/2010/01/nutrivene-d-what-we-saw.html" target="_blank" title="Got Down Syndrome">Got Down Syndrome</a></b></span></li>
<li><span data-mce-style="font-size: medium;" style="font-size: small;"><b><a data-mce-href="http://naturallybetterkids.com/blog" href="http://naturallybetterkids.com/blog" target="_blank">Naturally Better Kids</a></b></span></li>
<li><span data-mce-style="font-size: medium;" style="font-size: small;"><b><a data-mce-href="http://downsyndromeupupupandaway.blogspot.com/search/label/TNI" href="http://downsyndromeupupupandaway.blogspot.com/search/label/TNI" target="_blank" title="Down Syndrome: Up! Up! & Away!">Down Syndrome: Up! Up! & Away!</a></b></span></li>
<li><span data-mce-style="font-size: medium;" style="font-size: small;"><b><a data-mce-href="http://thedownsyndromeactionplan.blogspot.com/2012/02/mission-possible.html" href="http://thedownsyndromeactionplan.blogspot.com/2012/02/mission-possible.html">The Down Syndrome Action Plan</a></b></span></li>
</ul>
<h4 style="text-align: left;"><span data-mce-style="font-size: medium;" style="font-size: small;"><b><a href="https://www.blogger.com/blogger.g?blogID=7400925395674842077" name="n6">Where can I read about Vitamin Therapy and Down syndrome online?</a></b></span></h4>
<ul>
<li><span data-mce-style="font-size: medium;" style="font-size: small;"><b><a data-mce-href="http://www.ncbi.nlm.nih.gov/pmc/articles/PMC319096/?tool=pubmed" href="http://www.ncbi.nlm.nih.gov/pmc/articles/PMC319096/?tool=pubmed" target="_blank">Can nutritional supplements help mentally retarded children? An exploratory study</a>.</b> by Harrell RF, Capp RH,Davis DR, Peerless J, and Ravitz LR. Proceedings of the National Academy of Sciences USA, 1981. 78: 574–8.</span></li>
<li><span data-mce-style="font-size: medium;" style="font-size: small;"><a data-mce-href="http://www.doctoryourself.com/downs.html" href="http://www.doctoryourself.com/downs.html" target="_blank"><b>The Pioneering Work of Ruth Flinn Harrell: Champion of Children</b></a> by Andrew W. Saul from the <i>Journal of Orthomolecular Medicine</i>, 2004. Vol 19, No 1, p. 21-26.<b><br /></b></span></li>
<li><span data-mce-style="font-size: medium;" style="font-size: small;"><b><a data-mce-href="http://curezone.com/upload/Newsletter/Hypoglycemic_He/HYPONL9609.pdf" href="http://curezone.com/upload/Newsletter/Hypoglycemic_He/HYPONL9609.pdf" target="_blank">A Metabolic Overview of Down Syndrome</a></b> by Dr Robyn Cosford. Article starts on page 3 with the conclusion on page 6.</span></li>
<li><span data-mce-style="font-size: medium;" style="font-size: small;"><b><a data-mce-href="http://ndnr.com/web-articles/pediatrics/new-research-for-treating-down-syndrome/" href="http://ndnr.com/web-articles/pediatrics/new-research-for-treating-down-syndrome/" target="_blank">New Research for Treating Down Syndrome</a></b> by Erica Peirson, ND. 2012 NDNR Naturopathic Doctor News & Review</span></li>
<li><span data-mce-style="font-size: medium;" style="font-size: small;"><b><a data-mce-href="http://http://www.gotdownsyndrome.net/rebuttal.html" href="http://http//www.gotdownsyndrome.net/rebuttal.html" target="_blank">Rebuttal to Dr. Leshin’s & Quackwatch’s Article: “Nutritional Supplements for Down Syndrome: A Highly Questionable Approach,"</a></b> by Qadoshyah Fish, 2008</span></li>
<li><span data-mce-style="font-size: medium;" style="font-size: small;"><span data-mce-style="font-size: medium;" style="font-size: small;"><b><a data-mce-href="http://dsdaytoday.blogspot.com/2012/02/list-of-supplements-in-related-to-t21.html" href="http://dsdaytoday.blogspot.com/2012/02/list-of-supplements-in-related-to-t21.html" target="_blank">Supplements and T21</a></b> </span>a list of resources by Andi Durkin.</span></li>
</ul>
<h4 style="text-align: left;"><span data-mce-style="font-size: medium;" style="font-size: small;"><br /></span></h4><h4 style="text-align: left;"><span data-mce-style="font-size: medium;" style="font-size: small;"><b><a href="https://www.blogger.com/blogger.g?blogID=7400925395674842077" name="n7">Where can I learn about Neurodevelopment and Down syndrome?</a></b></span></h4>
<div>
<ul>
<li><span data-mce-style="font-size: medium;" style="font-size: small;"><b><a data-mce-href="http://einstein-syndrome.com/development/neurodevelopmental_approach/" href="http://einstein-syndrome.com/development/neurodevelopmental_approach/" target="_blank">Neurodevelopmental Approach to Down Syndrome</a></b></span></li>
<li><span data-mce-style="font-size: medium;" style="font-size: small;"><b><a data-mce-href="http://cirrie.buffalo.edu/encyclopedia/en/article/48/" href="http://cirrie.buffalo.edu/encyclopedia/en/article/48/" target="_blank" title="Down Syndrome: Sensory Integration, Vestibular Stimulation and Neurodevelopmental Therapy Approaches for Children">Down Syndrome: Sensory Integration, Vestibular Stimulation and Neurodevelopmental Therapies for Children</a></b></span></li>
<li><span data-mce-style="font-size: medium;" style="font-size: small;"><b><a data-mce-href="http://dsdaytoday.blogspot.com/p/neurodevelopment.html" href="http://dsdaytoday.blogspot.com/p/neurodevelopment.html" target="_blank">Neurodevelopment and DS: The Basics</a></b></span></li>
</ul>
</div>
<div>
<span data-mce-style="font-size: medium;" style="font-size: small;"><br /></span></div>
<h4 style="text-align: left;"><span data-mce-style="font-size: medium;" style="font-size: small;"><b><a href="https://www.blogger.com/blogger.g?blogID=7400925395674842077" name="n8">Where can I get biomedical information on Down syndrome?</a></b></span></h4>
<ul>
<li><span data-mce-style="font-size: medium;" style="font-size: small;"><b><a data-mce-href="http://www.riverbendds.org/index.htm" href="http://www.riverbendds.org/index.htm" target="_blank">Riverbends</a></b> Click the “Supplements” folder on the left.</span></li>
<li><span data-mce-style="font-size: medium;" style="font-size: small;"><b><a data-mce-href="http://sites.google.com/site/superdownsyndrome/supplements" href="http://sites.google.com/site/superdownsyndrome/supplements" target="_blank" title="Super Down Syndrome">Super Down Syndrome</a></b></span></li>
<li><span data-mce-style="font-size: medium;" style="font-size: small;"><b><a data-mce-href="http://dsdaytoday.blogspot.com/2012/02/list-of-supplements-in-related-to-t21.html" href="http://dsdaytoday.blogspot.com/2012/02/list-of-supplements-in-related-to-t21.html" target="_blank">Supplements and T21</a></b></span></li>
</ul>
<h4 style="text-align: left;"><span data-mce-style="font-size: medium;" style="font-size: small;"><b><a href="https://www.blogger.com/blogger.g?blogID=7400925395674842077" name="n9">Where can I learn about an integrative approach to Down syndrome (nutritional, enviromental, alternative therapies)?</a></b></span></h4><ul>
<li><span data-mce-style="font-size: medium;" style="font-size: small;"><b><a data-mce-href="http://dsdaytoday.blogspot.com/p/welcome-to-ds-day-to-day-guide.html" href="http://dsdaytoday.blogspot.com/p/welcome-to-ds-day-to-day-guide.html" target="_blank">Down Syndrome: A Day to Day Guide</a></b></span></li>
</ul>
<h4 style="text-align: left;"><span style="color: blue;"><u><b>Where can I get news on Down syndrome topics?</b></u></span></h4>
<div>
<br /></div>
<div>
<a href="http://www.globaldownsyndrome.org/news-community/" target="_blank">Global Down Syndrome News</a></div>
Unknownnoreply@blogger.comtag:blogger.com,1999:blog-7400925395674842077.post-38522085462076137382014-10-29T14:10:00.001-05:002014-12-30T13:51:58.212-06:00Informational Videos on Down Syndrome<div data-mce-style="text-align: center;">
<div style="text-align: left;">
<div>
<span style="color: #0b5394;"><span style="font-size: large;"><b>Learn how to optimize the health and well being of individuals with Down syndrome...</b></span></span></div>
</div>
<span style="font-size: large;"><br /></span>
<span style="color: #0b5394;"><span style="font-family: Arial,Helvetica,sans-serif; font-size: large;"><b>Overview</b></span></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><a href="http://www.autismone.org/content/introduction-down-syndrome-track-dr-erica-peirson-nd"><span style="font-family: Arial,Helvetica,sans-serif;"><b>Introduction to Down Syndrome Track at AutismOne 2014</b></span></a></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Dr.
Erica Peirson gives the introductory speech to the Down Syndrome Track
at Autism One. What does Down Syndrome OPTIONs do? Watch and find out! </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Erica Peirson, ND</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><br /></span>
<span style="font-family: Arial,Helvetica,sans-serif; font-size: large;"><b><a href="http://www.autismone.org/content/action-plan-parents-children-down-syndrome-andi-durkin">Action Plan for Parents of Children with Down Syndrome</a></b><br />Slides: <a href="http://www.autismone.org/content/action-plan-parents-children-down-syndrome">Action Plan for Parents of Children with Down Syndrome</a></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">With
proper intervention—physical, nutritional, neurodevelopmental,
medicinal and environmental—your child's future can be full of
opportunities instead of obstacles.</span><br />
<span style="font-size: large;">I've devised a proactive plan
of action while addressing my three year old child's root causes and
symptoms of Down syndrome. This is an exciting journey and I'm happy to
share with you what I have learned. (I apologize that the video is poor
quality and slides aren't visible during the presentation.)</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Andi Durkin</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><b>Inspiration & Practical Guidance</b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><br /></span>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><span style="font-size: large;"><a href="http://1.bp.blogspot.com/-oj1FezDoYdY/UUIzkQO-3pI/AAAAAAAAAD0/R88zo605CEw/s1600/JaneandLydia.jpg" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://1.bp.blogspot.com/-oj1FezDoYdY/UUIzkQO-3pI/AAAAAAAAAD0/R88zo605CEw/s1600/JaneandLydia.jpg" /></a></span></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Jane and Lydia Winans share the stage </span></td></tr>
</tbody></table>
<span style="font-family: Arial,Helvetica,sans-serif; font-size: large;"><b><a href="http://www.autismone.org/content/dawn-new-decade-0">The Dawn of a New Decade</a></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Jane
Winans, parent of a thriving child with Down syndrome, shares her
journey and discusses biomedical options she used for her daughter. Hear
from 9-year old, Lydia, in this moving opening session designed to
enlighten and empower parents</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Jane Winans, MA and Lydia Winans</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-family: Arial,Helvetica,sans-serif; font-size: large;"><b><a href="http://www.autismone.org/content/balance-tips-busy-household-lydia-presents-her-life">Balance Tips for a Busy Household & Lydia Presents her Life</a></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">How
do I balance it all? This talk gives helpful tips for maintaining
balance while juggling therapies, doctor appointments, food
restrictions, other children, marriage and self. What are the
possibilities for my child? Lydia is in 4th grade and will share a slice
of her life with you.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Jane Winans, MA and Lydia Winans</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-family: Arial,Helvetica,sans-serif; font-size: large;"><b><a href="http://www.autismone.org/content/how-communicate-your-physician-leslie-brewer-boswell">How to Communicate with Your Physician</a></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Slides: <a href="http://downsyndromesupport.net/2014/07/29/how-to-communicate-with-your-physician-3/">How to Communicate with Your Physician</a></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Do
you know if your doctor is familiar with the American Academy of
Pediatrics guidelines for screening for hypothyroidism in Down syndrome?
</span><br />
<span style="font-size: large;">Do you know how to communicate with your physician regarding thyroid testing and treatment? </span><br />
<span style="font-size: large;">We want to help you better communicate with your physician. </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Leslie Brewer Boswell </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-family: Arial,Helvetica,sans-serif; font-size: large;"><b><a href="http://www.autismone.org/content/my-life-pre-teen-lydia-winans">My Life as a Pre-teen - Lydia Winans</a></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Lydia
is 11 years old. She's a full-time student, sister, daughter and
friend. She loves to play basketball, go on vacations, spend time at
Camp Tekawitha and hang with her friends and family.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Lydia Winans</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><b><span style="font-family: Arial,Helvetica,sans-serif;"><a href="http://www.autismone.org/content/%E2%80%9Cthrow-mama-train%E2%80%9D-look-and-other-coping-strategies-help-bring-peace-and-joy-midst-uncertai-0">Coping Strategies</a></span></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Jane Winans shares her trial and errors, humor and wisdom in dealing with life’s stressful moments (years!). </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Jane Winans, MA </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><br /></span>
<span style="color: #0b5394;"><span style="font-size: large;"><b><span style="font-family: Arial,Helvetica,sans-serif;">Therapy </span></b></span></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-family: Arial,Helvetica,sans-serif; font-size: large;"><b><a href="http://www.missionpossiblecruise.com/videos/free-videos/83-redefining-the-reality-of-down-syndrome-a-personal-perspective.html">Redefining the Reality of Down Syndrome - A Personal Perspective</a></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">This
is an inspirational presentation of how the birth of her child with T21
changed this Occupational Therapist's perspective on therapy.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Geralyn Speisz</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-family: Arial,Helvetica,sans-serif; font-size: large;"><b><a href="http://www.autismone.org/content/feeding-options-and-oral-motor-methods-paving-way-optimal-speech">Feeding Options and Oral Motor Methods: Paving the Way for Optimal Speech </a></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">This
talk will educate participants on current and optimal dietary options
to ensure better overall health for their child with Down syndrome. The
impact of diet and different methods on how to transition children with
Down syndrome to solid foods will be discussed. Oral motor and feeding
treatment methods will be explained as well as the importance of using
these methods in order to develop a strong foundation for feeding skills
and the development of speech.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Jill Rabin M.S. CCC-SLP/L IBCLC</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><b><span style="font-family: Arial,Helvetica,sans-serif;"><a href="http://www.autismone.org/content/cranial-osteopathy-source-help-child-need-dr-richard-feely">Craniosacral Therapy and the Special Needs Child</a></span></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">What is Craniosacral therapy? How does it work? Is it helpful to the DS population? </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Dr. Richard Feely </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><b><span style="font-family: Arial,Helvetica,sans-serif;"><a href="http://www.autismone.org/content/neurodevelopment-holistic-approach-alison-wimmer">What is Neurodevelopmental Therapy?</a></span></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Alison
Wimmer explains the fundamentals of neurodevelopment and why it works
beautifully with the holistic approach to DS treatment, allowing
children with developmental challenges to succeed and exceed
expectations. </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Alison Wimmer </span><br />
<span style="font-size: large;"><b><span style="font-family: Arial,Helvetica,sans-serif;"><br /></span></b></span>
<span style="font-size: large;"><b><span style="font-family: Arial,Helvetica,sans-serif;"><a href="http://www.autismone.org/content/baby-led-weaning-approach-excellent-feeding-option-assist-babies-down-syndrome-transitionin-0">The Baby-Led Weaning Approach: An Excellent Feeding Option to Assist Babies with Down Syndrome in Transitioning to Solid Foods</a></span></b></span> <br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Why
is the use of a baby-led weaning approach an optimal way to introduce
solids to babies with Down syndrome? Baby-led weaning is a child
directed feeding approach that exposes babies to a variety of healthy
food choices, allowing them to develop their own food likes and dislikes
while simultaneously developing strong oral motor skills and feeding
skills. Baby-led weaning also encourages and further develops fine motor
and self-feeding skills. This lecture will address implementation and
healthy feeding choices that can positively impact the health of
children with Down syndrome and their families. </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Jill Rabin M.S. CCC-SLP/L IBCLC</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><b><span style="font-family: Arial,Helvetica,sans-serif;"><a href="http://www.autismone.org/content/sequential-processing-and-alternative-treatment-methods-0">Sequential Processing and Alternative Treatment Methods</a></span></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Alison
Wimmer will explain the fundamentals of neurodevelopment and why it
works beautifully with the holistic approach to DS treatment, allowing
children with developmental challenges to succeed and exceed
expectations. She will also discuss how lack of function or development
does not indicate a lack of potential: Each individual should be
provided with opportunities based on a perception of unlimited
potential.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Alison Wimmer </span><br />
<span style="font-size: large;"><br /></span>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><span style="font-size: large;"><a href="http://4.bp.blogspot.com/-j8vxEwyQgXk/UUIzkAyDk5I/AAAAAAAAADs/8e7bJjzunQk/s1600/Rabin.jpg" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://4.bp.blogspot.com/-j8vxEwyQgXk/UUIzkAyDk5I/AAAAAAAAADs/8e7bJjzunQk/s1600/Rabin.jpg" /></a></span></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Jill Rabin</span></td></tr>
</tbody></table>
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><a href="http://www.autismone.org/content/important-nutritional-oral-motor-feeding-and-language-ideas-ensure-optimal-development-your-0">Important Nutritional, Oral Motor, Feeding and Language Ideas to Ensure Optimal Development of Your Child with Down Syndrome</a></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Jill
Rabin will instruct participants on paving the path to good
communication and articulate speech for their children with Down
Syndrome, using proper medical intervention and assessment; optimal
nutrition and supplementation; and the facilitation of oral motor,
feeding, and language skills.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Jill Rabin, MS, CCC-SLP/L IBCLC </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><br /></span>
<span style="color: #0b5394;"><span style="font-family: Arial,Helvetica,sans-serif; font-size: large;"><b>Diet</b></span></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-family: Arial,Helvetica,sans-serif; font-size: large;"><b><a href="http://www.autismone.org/content/gaps-gut-and-psychologyphysiology-syndrome-kris-gustafson">GAPS™ - Gut And Psychology/Physiology Syndrome</a></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Notes: <a href="http://www.autismone.org/content/gaps%E2%84%A2-gut-and-psychologyphysiology-syndrome">GAPS™ - Gut And Psychology/Physiology Syndrome</a></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">GAPS™
(Gut And Psychology/Physiology Syndrome) shows the underlying cause of
some of the symptoms that plague special needs children, such as
digestive issues, malabsorption, food sensitivities and toxicity. This
session will explain how the state of the gut directly affects the
health of the body and how the GAPS™ nutritional protocol can heal or
greatly improve many of these symptoms.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Kristin Gustafson</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><b><span style="font-family: Arial,Helvetica,sans-serif;"><a href="http://www.autismone.org/content/enzymes-and-gut-health">Enzymes and Gut Health</a></span></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Parents
deal with gut issues on a daily basis. Many parents of children with
Down's Syndrome deal with the same GI problems experienced by those with
autism. Digestive enzymes from non-animal sources can often improve
many problems associated with food intolerance and malabsorption. This
lecture will help parents understand what enzymes are and how they work
in digestive health.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Devin Houston, PhD</span><br />
<span style="font-size: large;"><br /></span>
<span style="color: #0b5394;"><span style="font-family: Arial,Helvetica,sans-serif; font-size: large;"><b>Biochemistry </b></span></span><br />
<span style="font-family: Arial,Helvetica,sans-serif; font-size: large;"><b><br /></b></span>
<span style="font-family: Arial,Helvetica,sans-serif; font-size: large;"><b><a href="http://www.autismone.org/content/biochemistry-down-syndrome-opportunities-intervention-kent-macleod">The Biochemistry of Down Syndrome: Opportunities for Intervention</a></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Notes: <a href="http://www.autismone.org/content/biochemistry-down-syndrome-opportunities-intervention">The Biochemistry of Down Syndrome: Opportunities for Intervention</a></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Can
nutritional supplements benefit individuals with Down syndrome? Kent
MacLeod will review the history of supplementation in Down syndrome, and
discuss recent advances in nutritional science and how those
innovations can be used to positively impact the biochemistry of Down
syndrome.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Kent MacLeod</span><br />
<span style="font-size: large;"><b><span style="font-family: Arial,Helvetica,sans-serif;"><br /></span></b></span>
<span style="font-size: large;"><b><span style="font-family: Arial,Helvetica,sans-serif;"><a href="http://www.autismone.org/content/pediatric-hypothyroidism-implications-down-syndrome-and-autism-dr-erica-peirson">Pediatric Hypothyroidism: Implications for Down Syndrome and Autism</a></span></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Nearly
all children with Down syndrome require thyroid gland support.
Diagnosis of hypothyroidism has greatly changed in the last 40 years.
Patients are no longer treated based on very obvious symptoms. Doctors
need to return to a better understanding of the clinical signs and
symptoms of hypothyroidism and stop treating numbers on a page instead
of treating patients. Tragically, many children with Down syndrome who
have obvious signs and symptoms of hypothyroidism are going untreated
resulting in preventable delayed development. Many studies exist to
support the connection between hypothyroidism and Down syndrome.
Hypothyroidism in the mother is also connected to the development of
Down syndrome within the child and should be recognized and addressed to
avoid neurological damage to the unborn child. Dr. Peirson will review
the physiology of thyroid hormone and it's connections to the
neurological development and overall health of children with Down
syndrome. </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Erica Peirson, ND </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><b><span style="font-family: Arial,Helvetica,sans-serif;"><a href="http://www.autismone.org/content/biomedical-testing-and-treatment-where-begin-dr-norman-schwartz">Biomedical and Thyroid Basics: Where to Begin</a></span></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Notes: <a href="http://www.autismone.org/content/biomedical-and-thyroid-basics-where-begin">Biomedical and Thyroid Basics: Where to Begin</a></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Dr.
Schwartz will review the history and scientific research documenting
the benefit of nutrient and thyroid support in Down Syndrome. He will
explain low risk, high gain interventions to: optimize nutrition and
supplementation; monitor and support thyroid; choose first line,
functional lab tests; avoid environmental toxins; and support
detoxification. These are the building blocks needed to form a solid
foundation upon which your child may flourish.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Norm Schwartz, MD</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><b><span style="font-family: Arial,Helvetica,sans-serif;"><a href="http://www.autismone.org/content/whats-next-exploring-options-0">What's Next? Exploring Options</a></span></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Dr.
Anju Usman will explain the next level of biomedical healing including
optimizing a healthy gut-brain connection, and nutrients for brain
repair and neurogenesis, which is the brain's ability to create new
brain cells and new connections.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Anju Usman, MD</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><b><span style="font-family: Arial,Helvetica,sans-serif;"><a href="http://www.autismone.org/content/predictive-biomarkers-t21">Predictive Biomarkers in T21</a></span></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Comparative
effectiveness research depends upon a group of objective, independent
predictive biomarkers. A current state of the art in regard to evidence
based predictive biomarkers will be presented and discussed.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Russell Jaffe, MD, PhD, CCN</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><b><span style="font-family: Arial,Helvetica,sans-serif;"><a href="http://www.autismone.org/content/down-syndrome-evidence-susceptible-subgroup-vaccine-injury">Down Syndrome: Evidence of a Susceptible Subgroup for Vaccine Injury</a></span></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">This
talk will present biologically based evidence that children with Down
syndrome are uniquely susceptible to injury from vaccines. With an 18%
ASD comorbidity, we will explore the mechanisms that may connect
vaccines to autism in this highly vulnerable population. The
relationship of vaccines to Alzheimer’s will also be discussed.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Laurette Janak</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><b><span style="font-family: Arial,Helvetica,sans-serif;"><a href="http://www.autismone.org/content/down-syndrome-trisomy-21-understanding-problem-1">Down Syndrome Trisomy 21: Understanding the Problem </a></span></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Down
syndrome (DS) results from an extra copy of chromosome 21, including a
number of genes on this chromosome that affect antioxidant status and
methylation capacity, especially in neurons. These two factors are
critical for epigenetic regulation of neural development, and are
amenable to biomedical interventions. Dr. Deth will review the factors
that contribute to trisomy, as well as the molecular implications of
increased gene dosage for neurodevelopment and their relationship to
metabolic treatment options.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Richard C. Deth, PhD</span><br />
<span style="font-size: large;"><b><span style="font-family: Arial,Helvetica,sans-serif;"><br /></span></b></span>
<span style="font-size: large;"><b><span style="font-family: Arial,Helvetica,sans-serif;"><a href="http://www.autismone.org/content/health-risks-down-syndrome-moms-and-what-do-about-it">Health Risks for Down Syndrome Moms and What to Do About It</a></span></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Layman’s
terms will be used to explain the folate cycle and its implication to
the health risks for a mother with a Down syndrome child. Topics to be
discussed include: depression, heart disease, Alzheimer’s, cancer and
risk for having a child with autism. Strategies to minimize these risks
will be presented.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Laurette Janak</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><br /></span>
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><span style="font-size: large;"><a href="http://1.bp.blogspot.com/-bnUyv2XBTXQ/UUIzkV13wHI/AAAAAAAAAD4/rFIuJid6pRw/s1600/Speaker2012.jpg" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://1.bp.blogspot.com/-bnUyv2XBTXQ/UUIzkV13wHI/AAAAAAAAAD4/rFIuJid6pRw/s1600/Speaker2012.jpg" /></a></span></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;">Dr. Usman captivates the audience. </span></td></tr>
</tbody></table>
<span style="font-size: large;"><br /></span>
<span style="font-family: Arial,Helvetica,sans-serif; font-size: large;"><b><br /></b></span>
<span style="font-family: Arial,Helvetica,sans-serif; font-size: large;"><b><a href="http://www.autismone.org/content/boost-cognition-potential">Boost Cognition Potential</a></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Dr.
Anju Usman will explain biomedical techniques for optimizing a healthy
gut-brain connection including uncovering roadblocks to function as well
as introducing nutrients for brain repair and neurogenesis.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Anju Usman, MD</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><b><span style="font-family: Arial,Helvetica,sans-serif;"><a href="http://www.autismone.org/content/new-directions-fetal-down-syndrome-research-dr-paddy-jim-baggot">New Directions in Fetal Treatment of Down Syndrome</a></span></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Dr.
Baggot, OB/GYN and medical geneticist, shares a method to enhance brain
development before and after birth for babies with Down syndrome.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Dr. PD Baggot </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-family: Arial,Helvetica,sans-serif; font-size: large;"><b><a href="http://www.autismone.org/content/redoxmethylation-perspective-down-syndrome-dr-richard-deth">A Redox/Methylation Perspective on Down Syndrome</a></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Brain
development is driven by changes in methylation of DNA and histone
proteins which combine to provide epigenetic regulation. Methylation
depends upon methionine synthase and vitamin B12. B12 status in the
brain is distinct from the rest of the body, and brain levels of B12 are
markedly lower in autism, schizophrenia and normal aging. Recent
studies of the epigenetic effects of gluten and casein-derived opiate
peptides indicate their significance for development and life-long
disease risk. </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Richard Deth, PhD </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><b><span style="font-family: Arial,Helvetica,sans-serif;"><a href="http://www.autismone.org/content/glutamate-how-monitor-and-mediate-its-effects-down-syndrome-erica-peirson-nd">Glutamate: How to monitor and mediate its effects in Down Syndrome</a></span></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Notes: <a href="http://www.autismone.org/content/glutamate-how-monitor-and-mediate-its-effects-down-syndrome">Glutamate: How to monitor and mediate its effects in Down Syndrome</a></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Glutamate,
the major excitatory neurotransmitter in the brain, is both essential
and highly toxic. Patients with Down Syndrome experience a higher rate
of oxidative stress that damages neurons, potentially exposing them to
the harmful effects of excess glutamate released from damaged neurons.
Mediating the effects of excess glutamate is essential to optimizing the
health of neurons.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Erica Peirson, ND</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><b><span style="font-family: Arial,Helvetica,sans-serif;"><a href="http://www.autismone.org/content/neuroepigenetic-regulation-and-down-syndrome">Neuroepigenetic Regulation and Down Syndrome</a></span></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">What
is epigenetic regulation of gene expression, and why is it particularly
important in brain development? This presentation will provide a
fundamental understanding of epigenetics, focusing on the specific
implications of chromosome 21 trisomy.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Richard Deth, PhD</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><b><span style="font-family: Arial,Helvetica,sans-serif;"><a href="http://www.autismone.org/content/sulfur-down-syndrome-t21-catabolismsurvival-anabolismhigher-function">Sulfur in Down Syndrome T21 Catabolism/Survival to Anabolism/Higher Function</a></span></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Dr.
Russell Jaffe received his BS, MD and Ph.D from the Boston University
School of Medicine in 1972. He completed residency training in clinical
chemistry at the National Institutes of Health (1973 – 1976), remaining
on the permanent senior staff until 1979. He is board certified in
Clinical and Chemical Pathology.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">As a physician and
scientist who aspired to be comprehensive, objective, empiric and
experiential, Dr. Jaffe started his career searching for deeper
understanding, wisdom, evidence and insight in mechanisms of health.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Russell Jaffe, MD, PhD, CCN</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><b><span style="font-family: Arial,Helvetica,sans-serif;"><a href="http://www.autismone.org/content/down-syndrome-panel-0">Down Syndrome Panel</a></span></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Dr. Erica Peirson</span><br />
<span style="font-size: large;">Dr. Norman Schwartz</span><br />
<span style="font-size: large;">Dr. Russel Jaffe</span><br />
<span style="font-size: large;">Andi Durkin</span><br />
<span style="font-size: large;">Leslie Boswell</span><br />
<span style="font-size: large;">Laurette Janak </span><br />
<span style="font-size: large;"><br /></span>
<span style="color: #0b5394;"><span style="font-size: large;"><b><span style="font-family: Arial,Helvetica,sans-serif;">Education</span></b></span></span><br />
<span style="font-size: large;"><b><span style="font-family: Arial,Helvetica,sans-serif;"><br /></span></b></span>
<span style="font-size: large;"><b><span style="font-family: Arial,Helvetica,sans-serif;"><a href="http://www.autismone.org/content/lets-learn-reading-math-and-fun-stuff">Let's Learn - Reading Math and Fun Stuff</a></span></b></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Learn
and discuss fun ways to help your child read, do math, socialize, and
play. Explore simple, logical strategies and activities which will
increase overall retention of the information being presented. Sometimes
the best teaching strategies are the most obvious.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Alison Wimmer</span></div>
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<span class="Apple-style-span" style="color: #0b5394; font-size: x-large;"><b>Down Syndrome OPTIONs Conference</b></span></div>
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<span class="Apple-style-span" style="color: #0b5394; font-size: x-large;"><i>Understanding Trisomy 21 Emerging Science: </i></span></div>
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<span class="Apple-style-span" style="color: #0b5394; font-size: x-large;"><i>Applications for Treatment</i> </span></div>
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<span class="Apple-style-span" style="font-size: large;"><b>Friday, September 11th – Saturday, </b></span><span class="Apple-style-span" style="font-size: large;"><b><span class="Apple-style-span" style="font-size: large;"><b>September 12th</b></span> 2015 </b></span></div>
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<span class="Apple-style-span" style="font-size: large;"><b>Arkansas Children’s Hospital Little Rock, Arkansas</b></span></div>
<br />
<span class="Apple-style-span" style="font-size: large;"><br />Down Syndrome OPTIONs is partnering with researchers and clinicians at Arkansas Children’s Hospital to present new and relevant research supporting biomedical interventions that can improve the symptoms seen in those with Trisomy 21.<br /><br />Day 1 of the conference is designed to support physicians and other professionals. Day 2 will focus on giving parents, advocates and caregivers more knowledge and better tools to help individuals with Trisomy 21. Both days of the conference will be open for parents and professionals to attend.<br /></span><br />
<span style="font-size: large;"><b>Speaker Sneak Peek:</b> </span><br />
<span style="font-size: large;">Dr. Allan Butterfield, University of Kentucky</span><br />
<span style="font-size: large;">Dr. Jill James, Arkansas Children's Hospital</span><br />
<span style="font-size: large;">Dr. Dana Crawford, Albany Medical College</span><br />
<span style="font-size: large;">Dr. Russell Jaffe, Fellow, Health Studies Collegium</span><br />
<span style="font-size: large;">Dr. Richard Frye, Arkansas Children's Hospital</span><br />
<span style="font-size: large;">Dr. Erica Pierson, Down Syndrome Treatment Center of Oregon</span><br />
<span style="font-size: large;">Dr. Norman Schwartz, Practitioner, Medical Director DS OPTIONs</span></div>
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<span style="font-size: large;">Jane Winans, Advocate, Educator and Writer</span></div>
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<span style="font-size: large;">Lydia Winans, Self Advocate </span><br />
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<span class="Apple-style-span" style="font-size: large;"><b>Topics:</b></span><span class="Apple-style-span" style="font-size: large;"><br /></span><span class="Apple-style-span" style="font-size: large;">• Methylation/Epigenetics</span><span class="Apple-style-span" style="font-size: large;"><br /></span><span class="Apple-style-span" style="font-size: large;">• Oxidative Stress</span><span class="Apple-style-span" style="font-size: large;"><br /></span><span class="Apple-style-span" style="font-size: large;">• Pregnancy/Fetal Therapy</span><span class="Apple-style-span" style="font-size: large;"><br /></span><span class="Apple-style-span" style="font-size: large;">• Thyroid/Endocrine Function</span><span class="Apple-style-span" style="font-size: large;"><br /></span><span class="Apple-style-span" style="font-size: large;">• Immune Function</span><span class="Apple-style-span" style="font-size: large;"><br /></span><span class="Apple-style-span" style="font-size: large;">• CBS Over-expression</span><span class="Apple-style-span" style="font-size: large;"><br /></span><span class="Apple-style-span" style="font-size: large;">• Dyrk1a Over-expression</span><span class="Apple-style-span" style="font-size: large;"><br /></span><span class="Apple-style-span" style="font-size: large;">• Alzheimer’s Disease</span><span class="Apple-style-span" style="font-size: large;"><br /></span><span class="Apple-style-span" style="font-size: large;">• Neurogenesis</span><span class="Apple-style-span" style="font-size: large;"><br /></span><span class="Apple-style-span" style="font-size: large;">• Alternative Therapies</span></blockquote>
<span class="Apple-style-span" style="font-size: large;"><b><a href="http://www.downsyndrometreatment.net/downsyndromeoptions.html" target="_blank">Submit your abstract here</a> to be considered.</b></span><br />
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<span style="font-family: Verdana, sans-serif; font-size: large;"><a href="http://www.gofundme.com/8h8e34">Simply donate</a> today to help your <a href="http://www.downsyndromeoptions.org/">Down Syndrome OPTIONs</a> team travel to the DS Track at AutismOne in Chicago.</span></div>
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<a href="http://3.bp.blogspot.com/-VzO4QrkFPA8/U3FBl2xiwzI/AAAAAAAAAFM/HWIJrozbEuU/s1600/heartkids.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://3.bp.blogspot.com/-VzO4QrkFPA8/U3FBl2xiwzI/AAAAAAAAAFM/HWIJrozbEuU/s1600/heartkids.jpg" height="331" width="400" /></a></div>
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<span style="color: #222222; line-height: 20.285999298095703px;">Our loved ones with Down syndrome need more options to thrive... </span></b></span></div>
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<span style="font-family: Verdana, sans-serif;"><b><span style="color: #222222;"><span style="line-height: 20.285999298095703px;"><b><span style="color: #222222;">...OPTIONs needs your support to carry this message forward to parents, teachers, physicians and the community! </span></b></span></span></b></span></div>
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<span style="color: #222222; line-height: 20.285999298095703px;"><span style="color: black; font-family: Verdana, sans-serif;"><i>Thanks so much for your consideration.</i></span></span></div>
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<span style="line-height: 20px;"><span style="color: black; font-family: Verdana, sans-serif;">The <a href="http://www.downsyndromeoptions.org/p/about-us.html" style="color: #1155cc;" target="_blank">OPTIONs team</a> have spent countless hours organizing the <a href="http://www.autismone.org/content/2014-autismone-conference" style="color: #1155cc;" target="_blank">Down syndrome track at the AutismOne conference</a> for you, often digging into their own pockets to make this important event possible. </span></span><br />
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<span style="color: black; font-family: Verdana, sans-serif;"><span style="line-height: 19.31999969482422px;">Ever wish you could have tea with Andi Durkin of the </span><a href="https://www.facebook.com/ds.daytoday" style="color: #1155cc; line-height: 19.31999969482422px; text-decoration: none;" target="_blank">DS Daytoday</a><span style="line-height: 19.31999969482422px;"> blog?</span></span></div>
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<span style="color: black; font-family: Verdana, sans-serif;"><span style="line-height: 19.31999969482422px;">...Or coffee with </span><span style="line-height: 20.285999298095703px; text-align: right;"><a href="http://dsdaytoday.blogspot.com/2011/10/lydias-success-story.html" style="color: #1155cc;" target="_blank">Jane Winans</a>, mom to thriving preteen with DS, Lydia?</span></span></div>
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<span style="color: black; font-family: Verdana, sans-serif; line-height: 20.285999298095703px;">...Or chat with Kristen Morrison of</span><span style="color: black; font-family: Verdana, sans-serif; line-height: 20.285999298095703px;"> </span><a href="http://naturallybetterkids.com/" style="color: #1155cc; font-family: Verdana, sans-serif; line-height: 20.285999298095703px; text-decoration: none;" target="_blank">Naturally Better Kids</a><span style="color: black; font-family: Verdana, sans-serif; line-height: 20.285999298095703px;">?</span></div>
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<span style="color: black; font-family: Verdana, sans-serif;"><span style="line-height: 19.31999969482422px;">...Or sit with </span><span style="line-height: 20.285999298095703px; text-align: right;">Geralyn Spiesz of</span><span style="line-height: 20.285999298095703px; text-align: right;"> </span><a href="http://thedownsyndromeactionplan.blogspot.com/" style="color: #1155cc; line-height: 20.285999298095703px; text-align: right; text-decoration: none;" target="_blank">the Down Syndrome Action Plan</a><span style="line-height: 19.31999969482422px;"> and discuss palate expanders and IHAP over dessert? </span></span></div>
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<span style="color: black; font-family: Verdana, sans-serif;"><span style="line-height: 19.31999969482422px;">...Or lunch with </span><span style="line-height: 20.285999298095703px; text-align: right;">Leslie Bewer Boswell, thyroid wellness advocate</span><span style="line-height: 19.31999969482422px;"> to learn how to work with your doctor on better thyroid care for your child? </span></span></div>
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<span style="line-height: 19.31999969482422px;"><span style="color: black; font-family: Verdana, sans-serif;">This is all possible right now via skype/facetime/google hangout/phone and your support of OPTIONs. </span></span></div>
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<span style="color: black;"><span style="font-family: Verdana, sans-serif; line-height: 19.31999969482422px;">Please check it out and share with your friends and family. </span></span></div>
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<span style="color: black; font-family: Verdana, sans-serif;"><span style="line-height: 19.31999969482422px;">Thank you for your support! We are all in this together. </span><a href="http://l.facebook.com/l.php?u=http%3A%2F%2Fwww.gofundme.com%2F8h8e34&h=kAQFkNnsC&enc=AZP7Yvxs1zWRQPRDJGunJcp0CC-JryFTqWkMzjFWk1b-aG1dDiG31o87JbSDLoSUKw4mjJR2y7rLEmgPh2y4Zsaf7hYd9eQjgggBWy0tee64hsEJijaHl-bMKiqTjXkBcIVWW3l8gj3qijaFh9c1RGRZ&s=1" rel="nofollow" style="color: #1155cc; line-height: 19.31999969482422px; text-decoration: none;" target="_blank">http://www.gofundme.<wbr></wbr>com/8h8e34</a></span></div>
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<span style="color: black;"><span style="font-family: Verdana, sans-serif; line-height: 20px;">Have a great idea for a reward level? Let us know: email downsyndromeoptions@gmail.com.</span></span></div>
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<span style="color: black; font-family: Verdana, sans-serif; margin-left: 1em; margin-right: 1em;"><a href="http://2.bp.blogspot.com/-c-qXqYgjUlw/U2Va6oGlTsI/AAAAAAAAAyQ/nffApdmXqwg/s1600/OPTIONs+Logo+New+copy.jpg" style="color: #1155cc; margin-left: 1em; margin-right: 1em;" target="_blank"><img border="0" src="http://2.bp.blogspot.com/-c-qXqYgjUlw/U2Va6oGlTsI/AAAAAAAAAyQ/nffApdmXqwg/s1600/OPTIONs+Logo+New+copy.jpg" height="122" style="border: none; padding: 8px;" width="320" /></a></span></div>
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Unknownnoreply@blogger.comtag:blogger.com,1999:blog-7400925395674842077.post-56360549960933720092014-03-06T18:20:00.004-06:002014-03-06T18:20:39.018-06:002012 Down Syndrome Track at AutismOne<div data-mce-style="text-align: center;">
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<span style="color: #222222; font-family: Arial, Helvetica, sans-serif;">Here are links to the presentations from the DS Track at the 2012 AutismOne Conference:</span></div>
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<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-oj1FezDoYdY/UUIzkQO-3pI/AAAAAAAAAD0/R88zo605CEw/s1600/JaneandLydia.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><span style="font-family: Arial, Helvetica, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-oj1FezDoYdY/UUIzkQO-3pI/AAAAAAAAAD0/R88zo605CEw/s1600/JaneandLydia.jpg" /></span></a></td></tr>
<tr><td class="tr-caption" style="font-size: 13px; text-align: center;"><span style="font-family: Arial, Helvetica, sans-serif;">Jane and Lydia Winans share the stage</span></td></tr>
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<span class="Apple-style-span" data-mce-style="font-family: Arial, Helvetica, sans-serif;" style="font-family: Arial, Helvetica, sans-serif;"><span data-mce-style="font-weight: bolder;" style="font-weight: bolder;"><a data-mce-href="http://www.autismone.org/content/dawn-new-decade-0" href="http://www.autismone.org/content/dawn-new-decade-0" rel="nofollow" target="_blank"><span class="Apple-style-span" data-mce-style="color: #3d85c6;" style="color: #3d85c6;">The Dawn of a New Decade</span></a></span><span class="Apple-style-span" data-mce-style="color: #444444;" style="color: #444444;"><br /></span></span></div>
Jane Winans, parent of a thriving child with Down syndrome, shares her journey and discusses biomedical options she used for her daughter. Hear from 9-year old, Lydia, in this moving opening session designed to enlighten and empower parents<br />
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<span class="Apple-style-span" data-mce-style="font-family: Arial, Helvetica, sans-serif;" style="font-family: Arial, Helvetica, sans-serif;"><i data-mce-style="color: #444444; font-style: italic;" style="color: #444444;">Jane Winans, MA and Lydia Winans</i></span></div>
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<span class="Apple-style-span" data-mce-style="font-family: Arial, Helvetica, sans-serif;" style="font-family: Arial, Helvetica, sans-serif;"><span data-mce-style="font-weight: bolder;" style="font-weight: bolder;"><a data-mce-href="http://www.autismone.org/content/biomedical-basics-where-begin-0" href="http://www.autismone.org/content/biomedical-basics-where-begin-0" rel="nofollow" target="_blank"><span class="Apple-style-span" data-mce-style="color: #3d85c6;" style="color: #3d85c6;">Biomedical Basics: Where to Begin</span></a></span><span class="Apple-style-span" data-mce-style="color: #444444;" style="color: #444444;"><br /></span></span></div>
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(This video starts in the MIDDLE so you'll need to fast forward to the middle to see the beginning.) Dr. Schwartz will review the history and scientific research documenting the benefit of nutrient support in Down Syndrome. He will explain low risk, high gain interventions to: optimize nutrition and supplementation; monitor and support thyroid; choose first line, functional lab tests; avoid environmental toxins; and support detoxification. These are the building blocks needed to form a solid foundation upon which your child may flourish.<br />
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<i data-mce-style="color: #444444; font-style: italic;" style="color: #444444;"><span class="Apple-style-span" data-mce-style="font-family: Arial, Helvetica, sans-serif;" style="font-family: Arial, Helvetica, sans-serif;">Norm Schwartz, MD</span></i></div>
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<span class="Apple-style-span" data-mce-style="border-collapse: collapse; line-height: 19px; white-space: pre-line;" style="border-collapse: collapse; line-height: 19px; white-space: pre-line;"><span data-mce-style="font-weight: bolder;" style="font-weight: bolder;"><a data-mce-href="http://www.autismone.org/content/down-syndrome-trisomy-21-understanding-problem-1" href="http://www.autismone.org/content/down-syndrome-trisomy-21-understanding-problem-1" rel="nofollow" target="_blank"><span class="Apple-style-span" data-mce-style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;" style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;">Down Syndrome Trisomy 21: Understanding the Problem </span></a></span></span></div>
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Down Syndrome (DS) results from an extra copy of chromosome 21, including a number of genes on this chromosome that affect antioxidant status and methylation capacity, especially in neurons. These two factors are critical for epigenetic regulation of neural development, and are amenable to biomedical interventions. Dr. Deth will review the factors that contribute to trisomy, as well as the molecular implications of increased gene dosage for neurodevelopment and their relationship to metabolic treatment options.<br />
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<i data-mce-style="color: #444444; font-style: italic;" style="color: #444444;"><span class="Apple-style-span" data-mce-style="font-family: Arial, Helvetica, sans-serif;" style="font-family: Arial, Helvetica, sans-serif;">Richard C. Deth, PhD</span></i></div>
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<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-bnUyv2XBTXQ/UUIzkV13wHI/AAAAAAAAAD4/rFIuJid6pRw/s1600/Speaker2012.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><span style="font-family: Arial, Helvetica, sans-serif;"><img border="0" src="http://1.bp.blogspot.com/-bnUyv2XBTXQ/UUIzkV13wHI/AAAAAAAAAD4/rFIuJid6pRw/s1600/Speaker2012.jpg" /></span></a></td></tr>
<tr><td class="tr-caption" style="font-size: 13px; text-align: center;"><span style="font-family: Arial, Helvetica, sans-serif;">Dr. Usman captivates the audience.</span></td></tr>
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<span data-mce-style="font-weight: bolder;" style="font-weight: bolder;"><a data-mce-href="http://www.autismone.org/content/whats-next-exploring-options-0" href="http://www.autismone.org/content/whats-next-exploring-options-0" rel="nofollow" target="_blank"><span class="Apple-style-span" data-mce-style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;" style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;">What's Next? Exploring Options</span></a></span></div>
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Dr. Anju Usman will explain the next level of biomedical healing including optimizing a healthy gut-brain connection, and nutrients for brain repair and neurogenesis, which is the brain's ability to create new brain cells and new connections.<br />
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<i data-mce-style="color: #444444; font-style: italic;" style="color: #444444;"><span class="Apple-style-span" data-mce-style="font-family: Arial, Helvetica, sans-serif;" style="font-family: Arial, Helvetica, sans-serif;">Anju Usman, MD</span></i></div>
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<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-j8vxEwyQgXk/UUIzkAyDk5I/AAAAAAAAADs/8e7bJjzunQk/s1600/Rabin.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><span style="font-family: Arial, Helvetica, sans-serif;"><img border="0" src="http://4.bp.blogspot.com/-j8vxEwyQgXk/UUIzkAyDk5I/AAAAAAAAADs/8e7bJjzunQk/s1600/Rabin.jpg" /></span></a></td></tr>
<tr><td class="tr-caption" style="font-size: 13px; text-align: center;"><span style="font-family: Arial, Helvetica, sans-serif;">Jill Rabin, MS, CC-SLP</span></td></tr>
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<span style="font-family: Arial, Helvetica, sans-serif;"><br /></span><span class="Apple-style-span" data-mce-style="color: #3d85c6;" style="color: #3d85c6;"><a data-mce-href="http://www.autismone.org/content/important-nutritional-oral-motor-feeding-and-language-ideas-ensure-optimal-development-your-0" href="http://www.autismone.org/content/important-nutritional-oral-motor-feeding-and-language-ideas-ensure-optimal-development-your-0" target="_blank"><b><span class="Apple-style-span" data-mce-style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;" style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;">Important Nutritional, Oral Motor, Feeding and Language Ideas to Ensure Optimal Development of Your Child with Down Syndrome</span></b></a></span></div>
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Jill Rabin will instruct participants on paving the path to good communication and articulate speech for their children with Down Syndrome, using proper medical intervention and assessment; optimal nutrition and supplementation; and the facilitation of oral motor, feeding, and language skills.<br />
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Alison Wimmer will explain the fundamentals of neurodevelopment and why it works beautifully with the holistic approach to DS treatment, allowing children with developmental challenges to succeed and exceed expectations. She will also discuss how lack of function or development does not indicate a lack of potential: Each individual should be provided with opportunities based on a perception of unlimited potential.<br />
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Unknownnoreply@blogger.comtag:blogger.com,1999:blog-7400925395674842077.post-37298350421593803972014-03-06T18:18:00.003-06:002014-03-06T18:18:58.330-06:002013 Down Syndrome Track at AutismOne<div data-mce-style="text-align: center;">
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<b><span class="Apple-style-span" data-mce-style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;" style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;">The </span></b><b><span class="Apple-style-span" data-mce-style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;" style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;">Down Syndrome Track </span></b></div>
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<b><span class="Apple-style-span" data-mce-style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;" style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;">at the 2013 AutismOne Conference </span></b></div>
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<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #222222; text-align: center;">Click the links to the downloadable notes and presentations from the DS Track at the 2013 AutismOne Conference:</span><br /><br /><b><a href="http://www.autismone.org/content/action-plan-parents-children-down-syndrome"><span style="color: #3d85c6;">Action Plan for Parents of Children with Down Syndrome</span></a></b></span></div>
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<span style="font-family: inherit;">With proper intervention—physical, nutritional, neurodevelopmental, medicinal and environmental—your child's future can be full of opportunities instead of obstacles.<br />I've devised a proactive plan of action while addressing my three year old child's root causes and symptoms of Down syndrome. This is an exciting journey and I'm happy to share with you what I have learned.</span><span style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;"><br /></span><br />
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<span style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;"><i><span style="color: #444444;">Andi Durkin, BA</span></i></span></div>
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<span style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;"><b><a href="http://www.autismone.org/content/gaps%E2%84%A2-gut-and-psychologyphysiology-syndrome">GAPS™ - Gut And Psychology/Physiology Syndrome</a></b></span></div>
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<span style="font-family: inherit;">GAPS™ (Gut And Psychology/Physiology Syndrome) shows the underlying cause of some of the symptoms that plague special needs children, such as digestive issues, malabsorption, food sensitivities and toxicity. This session will explain how the state of the gut directly affects the health of the body and how the GAPS™ nutritional protocol can heal or greatly improve many of these symptoms.</span><span style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;"><br /></span><br />
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<span style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;"><i style="color: #444444;">Kristin Gustafson</i></span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"><b><br /><a href="http://www.autismone.org/content/enzymes-and-gut-health"><span style="color: #3d85c6;">Enzymes and Gut Health</span></a></b></span></span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"><b><br /></b></span></span><span style="font-family: inherit;">Parents deal with gut issues on a daily basis. Many parents of children with Down's Syndrome deal with the same GI problems experienced by those with autism. Digestive enzymes from non-animal sources can often improve many problems associated with food intolerance and malabsorption. This lecture will help parents understand what enzymes are and how they work in digestive health</span></div>
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<i style="color: #444444; font-family: Arial, Helvetica, sans-serif;">Devin Houston, PhD</i></div>
<span style="font-family: Arial, Helvetica, sans-serif;"><b><span style="color: #3d85c6;"><br /><a href="http://www.autismone.org/content/biochemistry-down-syndrome-opportunities-intervention"><span style="color: #3d85c6;">The Biochemistry of Down Syndrome: Opportunities for Intervention</span></a></span></b></span></div>
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Can nutritional supplements benefit individuals with Down syndrome? Kent MacLeod will review the history of supplementation in Down syndrome, and discuss recent advances in nutritional science and how those innovations can be used to positively impact the biochemistry of Down syndrome.<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"><br /></span></span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"><i><span style="color: #444444;">Kent MacLeod</span></i></span></span></div>
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<b><a href="http://www.autismone.org/content/feeding-options-and-oral-motor-methods-paving-way-optimal-speech"><span style="color: #3d85c6; font-family: Arial, Helvetica, sans-serif;">Feeding Options and Oral Motor Methods: Paving the Way for Optimal Speech </span></a></b></div>
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This talk will educate participants on current and optimal dietary options to ensure better overall health for their child with Down syndrome. The impact of diet and different methods on how to transition children with Down syndrome to solid foods will be discussed. Oral motor and feeding treatment methods will be explained as well as the importance of using these methods in order to develop a strong foundation for feeding skills and the development of speech.<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"><br /></span></span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"><i style="color: #444444;">Jill Rabin M.S. CCC-SLP/L IBCLC</i></span></span></div>
<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"></span><br /><b><a href="http://www.autismone.org/content/lets-learn-reading-math-and-fun-stuff"><span style="color: #3d85c6;">Let's Learn - Reading Math and Fun Stuff</span></a></b></span></div>
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Learn and discuss fun ways to help your child read, do math, socialize, and play. Explore simple, logical strategies and activities which will increase overall retention of the information being presented. Sometimes the best teaching strategies are the most obvious.<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"><br /></span></span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"><i style="color: #444444;">Alison Wimmer</i></span></span></div>
<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"></span><br /><b><a href="http://www.autismone.org/content/balance-tips-busy-household-lydia-presents-her-life"><span style="color: #3d85c6;">Balance tips for a busy household & Lydia presents her life</span></a></b></span></div>
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How do I balance it all? This talk gives helpful tips for maintaining balance while juggling therapies, doctor appointments, food restrictions, other children, marriage and self. What are the possibilities for my child? Lydia is in 4th grade and will share a slice of her life with you.<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"><br /></span></span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"><i data-mce-style="color: #444444; font-style: italic;" style="color: #444444;">Jane Winans, MA and Lydia Winans</i></span></span></div>
<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"></span><br /><b><a href="http://www.autismone.org/content/biomedical-and-thyroid-basics-where-begin"><span style="color: #3d85c6;">Biomedical and Thyroid Basics: Where to Begin</span></a></b></span></div>
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Dr. Schwartz will review the history and scientific research documenting the benefit of nutrient and thyroid support in Down Syndrome. He will explain low risk, high gain interventions to: optimize nutrition and supplementation; monitor and support thyroid; choose first line, functional lab tests; avoid environmental toxins; and support detoxification. These are the building blocks needed to form a solid foundation upon which your child may flourish.<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"><br /></span></span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"><i><span style="color: #444444;">Norm Schwartz, MD</span></i></span></span></div>
<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"></span><br /><b><a href="http://www.autismone.org/content/predictive-biomarkers-t21"><span style="color: #3d85c6;">Predictive Biomarkers in T21</span></a></b></span></div>
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Comparative effectiveness research depends upon a group of objective, independent predictive biomarkers. A current state of the art in regard to evidence based predictive biomarkers will be presented and discussed.<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"><b><br /></b></span></span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"><i><span style="color: #444444;">Russell Jaffe, MD, PhD, CCN</span></i></span></span></div>
<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"><b></b></span><span style="color: #3d85c6;"><br /></span><b><a href="http://www.autismone.org/content/down-syndrome-evidence-susceptible-subgroup-vaccine-injury" target="_blank"><span style="color: #3d85c6;">Down Syndrome: Evidence of a Susceptible Subgroup for Vaccine Injury</span></a></b></span></div>
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This talk will present biologically based evidence that children with Down syndrome are uniquely susceptible to injury from vaccines. With an 18% ASD comorbidity, we will explore the mechanisms that may connect vaccines to autism in this highly vulnerable population. The relationship of vaccines to Alzheimer’s will also be discussed.<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"><br /></span></span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"><i style="color: #444444;">Laurette Janak</i></span></span></div>
<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"></span><br /><b><a href="http://www.autismone.org/content/health-risks-down-syndrome-moms-and-what-do-about-it"><span style="color: #3d85c6;">Health Risks for Down Syndrome Moms and What to Do About It</span></a></b></span></div>
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Layman’s terms will be used to explain the folate cycle and its implication to the health risks for a mother with a Down syndrome child. Topics to be discussed include: depression, heart disease, Alzheimer’s, cancer and risk for having a child with autism. Strategies to minimize these risks will be presented.<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"><br /></span></span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"><i><span style="color: #444444;">Laurette Janak</span></i></span></span></div>
<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"></span><br /><b><a href="http://www.autismone.org/content/boost-cognition-potential"><span style="color: #3d85c6;">Boost Cognition Potential</span></a></b></span></div>
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Dr. Anju Usman will explain biomedical techniques for optimizing a healthy gut-brain connection including uncovering roadblocks to function as well as introducing nutrients for brain repair and neurogenesis.</div>
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<i style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #444444;">Anju Usman, MD</span></i></div>
<span style="font-family: Arial, Helvetica, sans-serif;"><br /><a href="http://www.autismone.org/content/neuroepigenetic-regulation-and-down-syndrome"><span style="color: #3d85c6;"><b>Neuroepigenetic Regulation and Down Syndrome</b></span></a><br /><span style="background-color: white; color: #393939; line-height: 16.890625px;"><br /></span></span></div>
What is epigenetic regulation of gene expression, and why is it particularly important in brain development? This presentation will provide a fundamental understanding of epigenetics, focusing on the specific implications of chromosome 21 trisomy.<br />
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<i style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #444444;">Richard Deth, PhD</span></i></div>
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<span style="font-family: Arial, Helvetica, sans-serif;"><b><span style="color: #3d85c6;"><a href="http://www.autismone.org/content/glutamate-how-monitor-and-mediate-its-effects-down-syndrome"><span style="color: #3d85c6;">Glutamate: How to monitor and mediate its effects in Down Syndrome</span></a></span></b><span style="background-color: white; color: #393939; line-height: 16.890625px;"><br /></span></span></div>
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Glutamate, the major excitatory neurotransmitter in the brain, is both essential and highly toxic. Patients with Down Syndrome experience a higher rate of oxidative stress that damages neurons, potentially exposing them to the harmful effects of excess glutamate released from damaged neurons. Mediating the effects of excess glutamate is essential to optimizing the health of neurons.<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"><br /></span></span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;"><span style="color: #3d85c6;"><i><span style="color: #444444;">Erica Peirson, ND</span></i></span></span><br />
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Unknownnoreply@blogger.comtag:blogger.com,1999:blog-7400925395674842077.post-23014579798682997102013-03-01T14:18:00.002-06:002013-06-26T15:29:50.494-05:00Therapeutic Listening<h2 data-mce-style="color: #3d85c6; text-align: center;" style="color: #3d85c6; line-height: 19px; text-align: center;">
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<span style="font-family: inherit;">by Erin</span><br />
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<span style="font-family: inherit;">In regard to using music as a tool to help our children reach their full potential, I thought I would share my experience with a sound based technique called Therapeutic Listening. I am an occupational therapist trained in Advanced Therapeutic Listening and the mother of a 4 year old girl who has Down syndrome. </span></div>
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<span style="font-family: inherit;">Before I describe the "magical" powers of Therapeutic Listening, I want you to think about how music has been powerful in your own life. Does it help you focus? Does it help you dance? Does it make you happy? Does it make you sad? Does it scare the pants off you (think Jaws)? Therapeutic Listening uses modulated music that has been filtered to enhance elements such as time, space, and detail. </span></div>
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<span style="font-family: inherit;">Basically, the people who engineer the music are an OT (Sheila Frick) and a musician type (her husband Ron). Sheila tells Ron that she needs a selection that facilitates a specific change, and he makes it happen using the inherent properties in existing music, and then emphasizing (or de-emphasizing) certain qualities that make it even more powerful. </span></div>
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<span style="font-family: inherit;">Therapeutic Listening provides direct auditory and vestibular input through specialized and very sensitive headphones and uses the auditory system's connections all over the brain (when you look at a functional MRI of a person who is listening to music, the brain is lit up like a Christmas tree) to affect change at all levels of the nervous system. Therapeutic Listening is not a stand alone technique. It is important to complete exercises and activities for core and breath activation to achieve the best and most lasting results. I have also found that a reflex integration program done along with Therapeutic Listening seems to have an even more powerful effect. </span></div>
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<span style="font-family: inherit;">For some clients, specific vestibular exercises are needed as well. For those using Doman (or similar) techniques, you will find a lot of extra activities are probably not necessary. Together your auditory and vestibular systems are responsible for protection, an understanding of space and time, monitoring and triggering movement, activating core and postural muscles, and they help lay the foundation for vision/oculomotor function. When they are not working well, you may see auditory defensiveness, tactile defensiveness, aimless wandering (inability to "land"), balance/coordination issues, low (or high) arousal, fear of movement, and language/processing delays. </span></div>
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<span style="font-family: inherit;">Therapeutic Listening can help with all of the following areas (and more): Attention Disorganized behavior Self-regulation Postural Control Bilateral Coordination Praxis (Motor Planning-includes speech) Fine motor control Oral motor/articulation Social skills Communication Visual motor integration The equipment for Therapeutic Listening is a very good quality pair of headphones and a player (either CD or a specific MP3 with slot radio, depending on whether your therapist has CDs or the newer CHIPs). It costs about $200 and can sometimes be paid for with flex spending funds. You may also be able to get funding from local charitable organizations. Children under two will need to listen to music over speakers, as the headphones may be too much for their tiny ears (according to audiologists). Typically therapists have lending libraries for the music for a small (or sometimes no) fee. Your insurance should cover the therapy visits if your child qualifies for OT or speech therapy already. </span></div>
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<span style="font-family: inherit;">For my clients, Therapeutic Listening just complements the other techniques I use during my sessions. A program lasts anywhere from a few months to a little over a year and is very individualized. Music is selected based on a detailed questionnaire and a thorough evaluation and is changed every two weeks with each selection being made after a determination of the progress demonstrated over the previous two week period. </span></div>
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<span style="font-family: inherit;">The music is tested during a session to see if it is a good fit, and then sent home for the client to listen to for 2, 30 minute sessions each day. Sometimes you will see some regression at first as an individual's brain becomes disorganized before it re-organizes itself in a more efficient way. It is important to keep your therapist informed of any changes that seem particularly unusual (or make you uncomfortable). </span></div>
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<span style="font-family: inherit;">In order to access this program you will need to find a therapist in your area using <a href="http://vitallinks.net/pages/Provider-Search.php">this link</a>. If a practitioner with advanced training is available, that person would be my first choice as he or she will have access to the entire library of music rather than just the modulated series. If there aren't advanced practitioners in your area, the modulated program (with 24 selections and counting) is still well worth the time and expense. You can always convince your therapist to get the advanced training later on! </span></div>
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<span style="font-family: inherit;">I use Therapeutic Listening in my practice with children who have sensory processing disorder, anxiety disorder, autism, ADHD, learning disabilities, and Down syndrome. I have had positive results with everyone including a 10 year old who was suddenly potty trained for bowel movements (with core activation), a boy who has been treated for anxiety with medication for years to no avail who is now having "great" days at school for the first time ever (his words), a child with global apraxia who is using many sentences, a boy who after listening during one session said to me with a smile, "I am unsad!" I replied, "Unsad?" He smiled again, "Yup, and I'm unmad too!" </span></div>
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<span style="font-family: inherit;">I also used Therapeutic Listening with my daughter, Carrigain, as soon as she turned 2. She had many signs already, and was a good imitator. She enjoyed pretend play, she knew her body parts, she knew animals and animal sounds. She had a few spoken words and approximations. She did not point, she could crawl but was not motivated to do so, she was never hungry or thirsty, and she was content with whatever was put in front of her. She had some auditory sensitivity, and was especially fearful of the vacuum cleaner (a clear sign of issues with understanding space). Shortly after starting the program, she started pointing, noticing things that weren't right in front of her, requesting (food, drink, and other things), and crawling faster and with much improved coordination. Her world was starting to make sense and she wanted to explore. Her language exploded. </span></div>
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<span style="font-family: inherit;">I remember going to an appointment shortly after she turned 2, and her doctor asked how many words she could say. My husband and I were at a loss-we had stopped counting. She was putting two and more words together well before her 3 rd birthday. Between 3 and 4, she started using multi-word phrases and sentences regularly. She is now four and her language is not the same as all the other 4 year olds in her preschool class, but tonight she said, "Hey guys, what are you playing with?" Then, "Oh, can I play too?" When she wants something, she says, "Mommy, may I have ______ please?" We have conversations. She makes me laugh. She gives me compliments. She tells her little sister what to do, and helps her feel better when she is sad. She tells me when she is sad, scared, embarrassed, frustrated, etc. using those words. </span></div>
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<span style="font-family: inherit;">I was also hoping that Therapeutic Listening would help Carrigain's walking, but she didn't walk until she was almost 3. In hindsight, I think I should have stimulated her vestibular system a little more. Still, when she did start walking, she walked well right away. She tried to do the "Hokey Pokey" the first week she was walking (singing for herself). I don't know what Carrigain's development would have been like had I not used Therapeutic Listening, but I do know that her language was surprising to most people we encountered in the Down syndrome world. </span></div>
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<span style="font-family: inherit;">We didn't do any special speech therapy (some early oral motor work and traditional speech). We didn't do an early reading program (although I wish we had). We didn't start Nutrivene, ginkgo, or Longvida Curcumin until after we had finished her Therapeutic Listening program. I would confidently recommend this program to any parent of a child who has Down syndrome. I feel like it has been a huge benefit to Carrigain's development; with each music selection she surged forward by leaps and bounds. </span></div>
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<span style="font-family: inherit;">You can read what NACD has to say about listening therapy and Down syndrome <a href="http://downsyndrome.nacd.org/language_acquisition.php">here</a>. Please note, that they are promoting a different program, but the justification for a listening based intervention is helpful. I am not familiar with their program, but it seems more specific to auditory processing rather than addressing the range of issues that Therapeutic Listening targets. For a nice video and more information about Therapeutic Listening try <a href="http://vitallinks.net/pages/About-Therapeutic-Listening.php">this link</a>. **Please note that I am not affiliated with this company, just a really big fan!</span></div>
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<span style="font-family: inherit;">Update: I have re-started Therapeutic Listening with my daughter, Carrigain, again with pretty clear benefits. She was becoming increasingly grouchy and antisocial with peers-not all the time, but noticeably over the last two years. I thought that was just who she wo<span style="font-family: inherit;">uld be, but now that she is on the music again she is much happy, much friendlier, and her play skills with peers are finally starting to blossom. We've had some nice fine motor skills gains as well. The change was significant enough that her therapists and teachers noticed, as did my parents.</span></span></div>
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<span style="font-family: inherit;"><span style="text-align: start;">We'd love to hear your experience with a therapy that you have found worth the time, money and energy please write to </span><a data-mce-href="mailto:options4DS@gmail.com" href="mailto:options4DS@gmail.com" style="text-align: start;" target="_blank">options4DS@gmail.com</a><span style="text-align: start;">.</span></span></div>
Unknownnoreply@blogger.comtag:blogger.com,1999:blog-7400925395674842077.post-36473319077204499472013-03-01T14:13:00.003-06:002023-01-01T14:02:44.316-06:00Neurodevelopmental Treatment: Just One Piece to the Puzzle<span style="font-family: inherit;"><br /></span>
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<span data-mce-style="font-size: large;" style="font-family: inherit; font-size: large;">Neurodevelopmental Treatment: Just One Piece to the Puzzle</span></h2>
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<span style="font-family: inherit;">by Geralyn Spiesz, an Occupational Therapist and a mother to a child with T21</span><br />
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<span style="font-family: inherit;"><b>“</b><b>Having a 10 year old with T21 sit in OT 3x/week and practice handwriting is not going to create change in his brain to improve ability. It seems the old adage 'practice makes perfect' is a bit flawed when applied to our children.</b></span></div>
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<b><span style="font-family: inherit;">As an OT, I struggled with this idea because it undercut everything I had been been taught.</span></b></div>
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<span style="font-family: inherit;"><b>As a mother, I intuitively knew it to be the case…</b><b>”</b></span></div>
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<span style="font-family: inherit;"><i><table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left;"><tbody><tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgQJ5dkLptBl4nXzj8GrFbj06Oe4P8nJr3y6ittK7pEq272zt7bG3UUQWsIW_nClggmjTQXoSuvdt3ny8RPLNNzr5kDCabmvDZlNV8Sr-9wAJau0gaMeyaTWII6y-igBAizXXV7mJgJkeMevXYC6jEPOgsiibnv5ehBHaJIZgc7mYtEKxEryKWnaK-3/s868/271440301_10161703991587818_505966540337838499_n.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="868" data-original-width="867" height="307" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgQJ5dkLptBl4nXzj8GrFbj06Oe4P8nJr3y6ittK7pEq272zt7bG3UUQWsIW_nClggmjTQXoSuvdt3ny8RPLNNzr5kDCabmvDZlNV8Sr-9wAJau0gaMeyaTWII6y-igBAizXXV7mJgJkeMevXYC6jEPOgsiibnv5ehBHaJIZgc7mYtEKxEryKWnaK-3/w307-h307/271440301_10161703991587818_505966540337838499_n.jpg" width="307" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;"></td></tr></tbody></table><br />Results from a recent study indicated that neither of the 2 treatment models [Occupational and Physical Therapy and Neurodevelopmental Treatment] that are commonly used with young children with motor impairment was effective in enhancing children’s rate of motor development or quality of movement, at least over a 1-year time period. These findings add to an increasing body of literature indicating that contemporary motor intervention procedures are not adequately meeting the hopes and vision for motor intervention. These findings also serve as a call for the field to explore alternative treatment methods for providing services. In particular, there is a need for greater involvement of parents in intervention. There is also a need for a renewed research agenda that explores issues related to the intensity of services and dynamic motor theory. Funding models need to be modified to encourage recommended and innovative motor intervention practices. </i> </span></div>
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<span style="font-family: inherit;"> -Mahoney et.al. 2004</span></div>
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<span style="font-family: inherit;">The above abstract is from a study done in 2004, which looked at children with Down Syndrome (hereafter referred to as T21, short for Trisomy 21) and Cerebral Palsy over the course of one year. One group of children received traditional interventions based on milestone mastery through structured play and traditional skill remediation techniques (traditional Occupational and Physical Therapy). The other group received Neurodevelopmental Treatment (NDT).</span></div>
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<b><span style="font-family: inherit;">What is Neurodevelopmental Treatment?</span></b></div>
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<span style="font-family: inherit;">NDT is a hands-on, problem solving approach that continues to evolve and change as the child’s development evolves and changes. Intervention involves direct handling and guidance through specific movement experiences to optimize function by “feeding” the correct patterns directly into our children’s perceptual experience.</span></div>
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<span style="font-family: inherit;">For example:</span></div>
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<span style="font-family: inherit;">Our children often have trouble with coordination and fine motor skills (the ability to easily and expertly use their hands). An OT may have the child practice tying shoelaces, or handwriting, or stringing beads, etc., over and over again. Unfortunately, this simply gives the child ample opportunity to practice those skills at the level they have mastered.</span></div>
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<span style="font-family: inherit;">An NDT therapist will recognize the relationship between low muscle tone and decreased sensation, which may be causing a variety of issues such as poor coordination and poor fine motor skills. The therapist will put a plan together which inputs pressure (propriocetion) and movement patterns directly to the brain to increase the likelihood that neurological change will occur.</span></div>
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<span style="font-family: inherit;">The approach is guided by the client's reactions throughout every treatment session. <b>NDT is a forward looking approach which is – finally -- a good reason to overlook all those lists of “what to expect” from physical, cognitive, and behavioral development of children with T21!</b></span></div>
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<span style="font-family: inherit;">NDT is not a static set of rules, but an evolving method based on the child. NDT therapists are experts at movement patterns and ways to use their hands to elicit those patterns. Many OT and PT’s are familiar with NDT approaches and may even incorporate certain principles into their treatment sessions, however pure and comprehensive NDT treatment must be provided by an NDT certified therapist. You can usually find lists through your local OT and PT communities.</span></div>
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<b><span style="font-family: inherit;">So why then, at the end of one year did the study reveal no real accomplishments of either the traditional therapeutic interventions or NDT with our children?</span></b></div>
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<span style="font-family: inherit;">I believe the answer lies within the context of environmental opportunity.</span></div>
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<b><span style="font-family: inherit;">Neuroplasticity: Our Brain Grows and Changes</span></b></div>
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<span style="font-family: inherit;">There are so many theories that fascinate me, both as an Occupational Therapist and a mother to a child with T21. While the concept of neuroplasticity (the ability of our brain – the central nervous system [CNS] to grow and change in response to injury) is hardly new, it is usually applied to theories of stroke, head trauma and the rehabilitation of other such brain injuries that have a definitive cause. <b>Gene over-expression created by the extra chromosome in T21 sets in motion many imbalances that results in an injury to our child’s brain -- the symptoms of which are collectively referred to as “Down Syndrome.”</b></span></div>
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<span style="font-family: inherit;">In terms of neuroplasticity, it matters not whether the cause was from a car accident, traumatic birth or an extra chromosome -- the fact remains there is a functional injury to the brain. If this approach is accepted, then providing treatments and therapies to simply address observable symptoms is all for naught. Having a 10 year old with T21 sit in OT 3x/week and practice handwriting is not going to create change in his brain to improve ability. It seems the old adage “practice makes perfect” is a bit flawed when applied to our children. As an OT, I struggled with this idea because it undercut everything I had been been taught. As a mother, I intuitively knew it to be the case.</span></div>
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<b><span style="font-family: inherit;">Epigenetics: Our Environment Can Cause Change</span></b></div>
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<span style="font-family: inherit;">Another truly fascinating field of study is epigenetics. The guiding premise behind this field of research is that environmental factors can alter the way our genes are expressed. “Environmental” can mean anything from everyday sensory and movement experiences, to balanced metabolic environments and nutrition, to high expectations, wellness, opportunity and unconditional love.</span></div>
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<b><span style="font-family: inherit;">Epigenetics + Neuroplasticity= Endless Opportunity</span></b></div>
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<b><span style="font-family: inherit;">When we approach our child with T21 from the perspective that his CNS is capable of continual growth and change, as well as considering environmental factors (and all that entails) can alter gene expression, we find ourselves staring at endless opportunities to positively affect development.</span></b></div>
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<span style="font-family: inherit;">As crucial as NDT input is, it is truly just a fraction of the story because guided movement patterns and experiences are only as good as the opportunity the child has to use them in his everyday life. If the NDT therapist spent the morning teaching your child to log roll, going home and putting the child in a swing or a play-pen will do nothing to reinforce what his brain has just experienced.</span></div>
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<b><span style="font-family: inherit;">The Floor: a Place to Learn</span></b></div>
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<span style="font-family: inherit;"> Clear the furniture out of the center of the room, put down a few mats, and put the child on the ground (If there are no medical contraindications, the child should be on their tummy!) -- and leave him there. Better yet, get on the floor with him. <b>Explain to his siblings that because their brother is getting so strong, he needs to be challenged (quite a stark departure in perception from focusing on the things he can’t do!).</b> Create rolling games the siblings can play with him. If you want to read to him, get on the floor with him. If the babysitter is coming over, tell her to play games with him on the floor. If he is in daycare, speak with the teachers about your desire for continual floor time with opportunities to roll. Providing continual environments, frequent opportunities and heightened expectations, you are creating a powerful intervention. The glue that binds the approaches together boils down to perception. In this scenario, days fly by filled with games, laughter, bonding and creativity.</span></div>
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<b><span style="font-family: inherit;">Therapy: a "Way of Life" rather than a "To-Do" List</span></b></div>
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<span style="font-family: inherit;">This perspective is a very different reality from the “to-do” list mentality of making sure you getting your child on the floor X times a day and making him roll X number of rolls. The perception that this child has “special needs,” and therefore the joy is sucked out of everything, because he has to spend his time doing “therapy.” If your child sees his siblings playing games and having fun while he must get on the floor and pointlessly roll for X number of times, it creates a perceptual shift in him as well -- and not for the better.</span></div>
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<span style="font-family: inherit;">If the floor is where your child knows his toys, games, reading time, “roughhousing,” etc. takes place, then you are affecting his opportunity to cement the skills, initiation of the skills, environmental challenge to use the skills, his perception of himself as a creator of his own destiny (no more initiation of activity goals when he’s older, he will self direct in any environment!), his visual perceptual skills, his sensory integration skills, his cognitive skills and his experience of your expectations. He will have a safe, consistent, reliable and frequent place to get the idea and time to process and use the skills taught by the NDT therapist.</span></div>
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<span style="font-family: inherit;">NDT is a critical input to the brain -- it is showing the brain what a proper movement, posture, etc, should feel like. Neuroplasticity makes permanent change possible, especially in the very young. Epigenetics tells us to concern ourselves with environments. <b>Nutrition, supplementation, opportunity, wellness, joy, laughter, unconditional love, are just some of the environments we can control.</b></span></div>
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<span style="font-family: inherit;">Parents very often are looked at as the “therapy carryover,” that basically therapy is only effective if the parents can complete the “to-do list.” This is a joy-sucking process -- one which will undermine everything you are trying to accomplish.</span></div>
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<b><span style="font-family: inherit;">The key to blending these approaches and getting real results boils down to parents. Not how much money we have, or how diligently we carryover the to-do list, but in the very reason we had children to begin with.</span></b></div>
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<b><span style="font-family: inherit;">To love, teach, have fun with, and enjoy all that childhood has to offer.</span></b></div>
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<b><span style="font-family: inherit;">All of these things change our children’s brain. All of these things change our perspective.</span></b></div>
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<b><span style="font-family: inherit;">All of these things will dramatically impact his future.</span></b></div>
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<b><span style="font-family: inherit;">Recommended Reading</span></b><br />
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<span data-mce-style="text-decoration: underline;" style="font-family: inherit; text-decoration: underline;">Early Motor Intervention, The Need for New Treatment Paradigms</span></div>
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<span data-mce-style="text-decoration: underline;" style="font-family: inherit; text-decoration: underline;">http://depts.washington.edu/isei/iyc/mahoney_17_4.pdf</span></div>
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<a data-mce-href="http://www.google.com/url?q=http://www.sciencedaily.com/releases/2009/04/090412081315.htm&sa=U&ei=HzeHT92sApPpgQemgJX-Bw&ved=0CDQQFjAF&usg=AFQjCNGvuszPvJHPpA3QDmeFtyRgwYAiig" href="http://www.google.com/url?q=http://www.sciencedaily.com/releases/2009/04/090412081315.htm&sa=U&ei=HzeHT92sApPpgQemgJX-Bw&ved=0CDQQFjAF&usg=AFQjCNGvuszPvJHPpA3QDmeFtyRgwYAiig"><span style="font-family: inherit;">Epigenetics: DNA Isn't Everything</span></a></div>
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<a data-mce-href="http://www.sciencedaily.com/releases/2009/04/090412081315.htm" href="http://www.sciencedaily.com/releases/2009/04/090412081315.htm"><span style="font-family: inherit;">http://www.sciencedaily.com/releases/2009/04/090412081315.htm</span></a></div>
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<a data-mce-href="http://www.google.com/url?q=http://www.time.com/time/magazine/article/0,9171,1952313,00.html&sa=U&ei=HzeHT92sApPpgQemgJX-Bw&ved=0CCkQFjAB&usg=AFQjCNFRpQUtguvyXskYUFD0x3nGYEus4g" href="http://www.google.com/url?q=http://www.time.com/time/magazine/article/0,9171,1952313,00.html&sa=U&ei=HzeHT92sApPpgQemgJX-Bw&ved=0CCkQFjAB&usg=AFQjCNFRpQUtguvyXskYUFD0x3nGYEus4g"><span style="font-family: inherit;">Epigenetics, DNA: How You Can Change Your Genes, Destiny - TIME</span></a></div>
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<a data-mce-href="http://www.time.com/time/magazine/article/0,9171,1952313,00.html" href="http://www.time.com/time/magazine/article/0,9171,1952313,00.html"><span style="font-family: inherit;">www.time.com/time/magazine/article/0,9171,1952313,00.html</span></a></div>
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<span style="font-family: inherit;">Neurodevelopmental Treatment</span></div>
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<a data-mce-href="http://www.sallymackenzie.com/sitev1/index.asp" href="http://www.sallymackenzie.com/sitev1/index.asp"><span style="font-family: inherit;">http://www.sallymackenzie.com/sitev1/index.asp</span></a></div>
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<a data-mce-href="http://www.ndta.org" href="http://www.ndta.org/"><span style="font-family: inherit;">http://www.ndta.org</span></a></div>
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<a data-mce-href="http://www.ndta.org" href="http://www.ndta.org/"><span style="font-family: inherit;">/</span></a></div>
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<span style="font-family: inherit;">Doman, G. (1994). What to do About Your Brain Injured Child; or Your </span><span style="font-family: inherit;">Brain-Damaged, Mentally </span><span style="font-family: inherit;">Retarded, Mentally Deficient, Cerebral-palsied, Spastic, Flaccid, Rigid, Epileptic, Autistic, Athetoid, Hyperactive, Down’s Child. Garden City Park, NY. Avery Publishing Group.</span></div>
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<span style="font-family: inherit;">We'd love to hear your experience with a therapy that you have found worth the time, money and energy please write to <a data-mce-href="mailto:options4DS@gmail.com" href="mailto:options4DS@gmail.com" target="_blank">options4DS@gmail.com</a>.</span></div>
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Unknownnoreply@blogger.comtag:blogger.com,1999:blog-7400925395674842077.post-70656759361849738422013-03-01T14:12:00.000-06:002013-06-26T15:26:28.411-05:00Why I Chose Neurodevelopment Therapy For My Daughter<h2 data-mce-style="color: #3d85c6; text-align: center;" style="color: #3d85c6; line-height: 19px; text-align: center;">
<span data-mce-style="font-size: large;" style="font-family: inherit; font-size: small;">Why I Chose Neurodevelopment Therapy for my Daughter</span></h2>
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<span style="font-family: inherit;">by Laura Gamroth</span><br />
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<a href="http://2.bp.blogspot.com/-F6dl7zPhfss/UUIvUBvKOzI/AAAAAAAAADE/gohZ46ol-vo/s1600/olivia.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><span style="font-family: inherit;"><img border="0" src="http://2.bp.blogspot.com/-F6dl7zPhfss/UUIvUBvKOzI/AAAAAAAAADE/gohZ46ol-vo/s1600/olivia.jpg" /></span></a></div>
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<span style="font-family: inherit;">Four and a half years ago our 4th beautiful baby girl was born with Trisomy 21 (Down syndrome). Like many parents, I started looking for the best ways to help our daughter thrive. I contacted the local early intervention organization in Canada and, by four weeks of age, she had started occupational as well as physical therapy. Within the year, although very sporadically, she had also started speech therapy.</span><br />
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<span style="font-family: inherit;">I was pleased. Surely starting these interventions so early would give her a great start. Our daughter was fortunate to have the same occupational and physical therapists until the age of three, both of whom were wonderful and caring.</span><br />
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<span style="font-family: inherit;">As is common here, she had occupational and physical therapy about every six weeks, with activities to work on at home between each session. I was told that the purpose wasn't to help our daughter to reach her milestones faster, but to help prevent her from developing bad habits while reaching those milestones. Our daughter's therapists meant well and I respect them in many ways but they still had the commonly held belief that "kids with Down syndrome will reach their milestones in their own time". I struggled with this because as my beautiful little girl was encouraged to reach her milestones "in her own time", typical babies were already starting to progress faster.</span><br />
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<span style="font-family: inherit;">I am a compulsive researcher and when the usual books that are recommended for babies with Trisomy 21 did not reveal the answers I was searching for, I kept looking. I turned to the internet next and after some searching, started to hear about some kids with Trisomy 21 who learned to read and do math when they were only preschoolers. As they grew up these kids were smashing preconceived notions about Trisomy 21. I admit that I was very skeptical at first. Until this time I had never heard of any child , genetically enhanced or not, being able to read at the age of three or four. Skeptical as I was, I was also intrigued and spent hours searching to the furthest, cobwebbed corners of the internet to learn as much as possible.</span><br />
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<span style="font-family: inherit;">By this time, my daughter was around six months of age. I was still skeptical but I reasoned that even if my daughter didn't learn to read as a preschooler showing her flashcards with words and pictures would allow her to spend more time face to face hearing me speak and talk about the cards. I included pictures on the back of the cards, so if nothing else, she would learn the meaning of the words along with the vocabulary. At the time it felt like a giant leap of faith and it wasn't until a couple of months later that I finally shared this "far fetched" notion with my husband.</span><br />
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<span style="font-family: inherit;">As I continued with the reading program I decided to start some other aspects of neurodevelopmental therapy and ordered some books on the subject, gradually implementing my own program. One of the next activities I introduced was a crawling track, and while I had to wait quite a while to see the results of our reading program, the crawling track gave us positive feedback within a very short time. We built the track daughter was about 7 months and she was crawling at eight months of age.</span><br />
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<span style="font-family: inherit;">This was the first real success that told me that our decision to pursue a neurodevelopmental program was having a posiitve impact. According to several milestone charts, on average, kids with Trisomy 21 crawl at fourteen months while typical kids crawl at around 10 months. While it is difficult to give absolute credit to our daughter's neurodevelopmental program for all of her achievements, I have no doubt that her mobility was greatly improved by her crawling track. The reason that learning to crawl is so important to me is that a whole new world is opened up to a baby who is mobile. All of their senses are stimulated as they see and feel new things while exploring through crawling. This initial success spurred me on to research and implement more neurodevelopmental activities.</span><br />
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<span style="font-family: inherit;">My husband and I were very careful not to test our daughter during this time. We provided lots of input but because we wanted learning to be pressure free, fun and the start of a lifelong love of knowledge , we did not test. It was a long year and a half wait but shortly before our daughter turned two she started to read words out loud. By the time she was three and a half she read her first short story and, one year later, her reading vocabulary was tested at just below a fourth grade level. She is now a few months shy of her fifth birthday and although her reading vocabulary is higher she enjoys reading at about a mid grade two level for fun. She loves Robert Munsch and reads our quickly growing library of his stories regularly.</span><br />
<span style="font-family: inherit;">When our daughter was three we decided to pursue an evaluation with a neurodevelopmentalist. We now go three times per year for an evaluation and follow a program designed to meet her specific needs. We did a pretty good job with our home program but the professionally designed program is very well rounded and covers every aspect of her development.</span><br />
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<span style="font-family: inherit;">As I said in the beginning I was very skeptical but, after researching and seeing the results of our daughter's program, it really makes sense to me that if all kids need some stimulation to progress that kids with Trisomy 21 would progress faster with even more. It is common knowledge that in past years when babies with Trisomy 21 were sent to institutions they did not progress nearly as well as those who were brought home and raised in loving families. I think the reason that neurodevelopmental programs are so helpful is that not only do they offer much more stimulation than a child would typically receive but they also help the child's brain to reorganize so that it is able to utilize that information better.</span><br />
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<span style="font-family: inherit;">While we put a lot of importance on getting the daily activities on our daughter's program done we also do not stress if we have to take a day, or even a week off. If we don't accomplish as much of her program as we feel we should be able to on any given day we are okay with it and just start over again the next day. We are a busy family with four daughter's and feel it is important to balance our daughter's program with the needs of the entire family. We try to get most of the program done while our older daughter's are in school while other activities such as having our daughter read stories fit in well at other times like our bedtime routine. It can be difficult at times but we gradually getting better at creating a balance.</span><br />
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<span style="font-family: inherit;">Today we are so grateful for the path we have chosen for our daughter. There are some areas that we still need to work on. For example, although we are able to understand her and she often speaks in 6 or 7 word sentences, we are working on her articulation. Physically she is doing very well and has always been either ahead of or at the early end on the Trisomy 21 milestone charts however it is noticeable in a group of her peers that she doesn't run as fast or jump as far. </span><br />
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<span style="font-family: inherit;">On the other hand, academically, she is much more advanced than any four year old that I know. Besides reading so well she is doing math at about a kindergarten level and is able to find all of the continents and many countries on a map. She is able to communicate clearly and talk about everything from her recently conquered fear of heights to what happened today at preschool, what activities we did on a recent holiday and what her favorite clothing choices are. She is able to read a menu in a restaurant, order and discuss her choices with the waitress unassisted. Physically, she runs, jumps and her latest accomplishment is riding her tricycle. Our daughter goes to a typical preschool and has taken swimming lessons independently. She recently started playing T-ball and I'm sure the coach has no idea that she is sporting an extra chromosome!</span><br />
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<span style="font-family: inherit;">We'd love to hear your experience with a therapy that you have found worth the time, money and energy please write to <a data-mce-href="mailto:options4DS@gmail.com" href="mailto:options4DS@gmail.com" target="_blank">options4DS@gmail.com</a>.</span></div>
Unknownnoreply@blogger.comtag:blogger.com,1999:blog-7400925395674842077.post-3442024061293116282013-03-01T14:11:00.001-06:002013-06-26T15:21:54.114-05:00Therapy Books, Sites & Blogs<span style="font-family: inherit;"><br /></span>
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<span style="font-family: inherit;">Online Therapy Videos</span></h3>
<span style="font-family: inherit;"> <a href="http://www.autismone.org/content/important-nutritional-oral-motor-feeding-and-language-ideas-ensure-optimal-development-your-0">Important Nutritional, Oral Motor, Feeding and Language Ideas to Ensure Optimal Development of Your Child with Down Syndrome</a> by Jill Rabin, MS, CCC-SLP<br /><br /><a href="http://www.autismone.org/content/sequential-processing-and-alternative-treatment-methods-0">Sequential Processing and Alternative Treatment Methods</a> by Neurodevelopmentalist, Alison Wimmer<br /><br />Here are some <a href="http://www.youtube.com/watch?v=AEduhGjFQCM">great video clips</a> from James D. MacDonald of Communicating Partners with tips to help your child express himself.<br /><br /><a href="http://senc.us/14.html">Free audio seminar on Neurodevelopmental Therapy</a> by Kay Ness. <br /><br />NACD (The National Association for Child Development) has a YouTube channel where they post neurodevelopmental videos, located here: <a href="http://www.youtube.com/user/NACDDOTORG">NACD YouTube Channel</a><br /><br /><a href="http://www.talktoolsvideos.com/">Early Intervention: Oral Placement Therapy for Children with Down Syndrome (3 GB full video) </a> by Sara <br /><br /><a href="http://www.autismone.org/content/feeding-options-and-oral-motor-methods-paving-way-optimal-speech">Feeding Options and Oral Motor Methods: Paving the Way for Optimal Speech </a> by Jill Rabin M.S. CCC-SLP/L IBCLC<br /><br /><a href="http://www.autismone.org/content/lets-learn-reading-math-and-fun-stuff">Let's Learn - Reading Math and Fun Stuff</a></span><span style="font-family: inherit;">Learn and discuss fun ways to help your child read, do math, socialize, and play. Explore simple, logical strategies and activities which will increase overall retention of the information being presented. Sometimes the best teaching strategies are the most obvious.</span><span style="font-family: inherit;"><br /></span><br />
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<span style="font-family: inherit;"> Therapy Articles</span></h3>
<span style="font-family: inherit;"><br /><a href="http://www.talktoolsvideos.com/downloads/The_Oral-Motor_Myths_of_Down_syndrome.pdf">The Oral Motor Myths of Down Syndrome(84k)</a><br /><br /><a href="http://jamesdmacdonald.org/Articles/FDown/COMMUNICATIONPROBLEMSANDD.html">Communication Issues and Down Syndrome</a><br /><br /><a href="http://jamesdmacdonald.org/Articles/FDown/FromIsolationtoConversati.html">From Isolation to Conversation: Improving Social Communication Skills</a><br /> </span><br />
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<span style="font-family: inherit;"><a href="http://jamesdmacdonald.org/Articles/FDown/CANACHILDWITHDOWNSYNDROME.html">Can a Child with DS be Autisic like?: When Your Child with DS is Not Social</a><br /><br /> </span></div>
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<span style="font-family: inherit;">Recommended Books on Therapy</span></h3>
<span style="font-family: inherit;"><br /><a href="http://www.google.com/search?q=Children+of+Dreams,+Children+of+Hope&oe=utf-8&rls=org.mozilla:en-US:official&client=firefox-a&um=1&ie=UTF-8&tbo=u&tbm=shop&source=og&sa=N&hl=en&tab=wf#hl=en&ds=pr&pq=children%20of%20dreams%2C%20children%20of%20hope&xhr=t&q=%22Children%20of%20Dreams%2C%20Children%20of%20Hope%22&cp=1&qe=IkNoaWxkcmVuIG9mIERyZWFtcywgQ2hpbGRyZW4gb2YgSG9wZSI&qesig=k_1x06cNjCcQ-PkCs9pL_A&pkc=AFgZ2tnKBDzEYu09txhWSrPiSHOccXg0_oU1UPP6-axdTgEjdOtHZraFuju9WraEeAoV2ScvyLvBY39vw_XgU1ohbDXHJhjQqQ&pf=p&sclient=psy&client=firefox-a&rls=org.mozilla:en-US%3Aofficial&tbm=shop&source=hp&aq=f&aqi=&aql=&oq=%22Children+of+Dreams,+Children+of+Hope%22&pbx=1&bav=on.2,or.r_gc.r_pw.&fp=f50de20941def1f6&biw=1024&bih=615">Children of Dreams, Children of Hope</a> by Raymundo Veras<br />This book is great for inspiration. Dr. Veras talks about Down syndrome in children. He uses the methods by Glenn Doman to make these children part of their peers. Since this book was written in the early 70's it is quit amazing that he sees these "veras" children as children who can do more than be given up on or locked away in institutions<br /><br /><a href="http://www.amazon.com/Fit-Baby-Smart-Your/dp/0757003761/ref=sr_1_1?s=books&ie=UTF8&qid=1372276057&sr=1-1&keywords=fit+baby+smart+baby+your+baby">Fit Baby, Smart Baby, Your Baby</a> by Glenn Doman and Douglas Doman<br />Glenn Doman-founder of The Institutes for the Achievement of Human Potential-along with Douglas Doman and Bruce Hagy guide you in maximizing your child's physical capabilities. They clearly explain each stage of mobility and show how to create an environment that will help your baby more easily achieve that stage. Full-color charts, photographs, illustrations, and detailed yet easy-to-follow instructions are included to help you create an effective home program.<br /><br /> <a href="http://www.amazon.com/Play-Talk-Practical-Late-Talking-Conversation/dp/0978832027/ref=sr_1_1?ie=UTF8&qid=1310058157&sr=8-1">Play To Talk: A Practical Guide to Help Your Late-Talking Child Join the Conversation</a> by James MacDonald Ph.D. and Pam Stoika Ph.D. A guide for children of all ages. Teaches you how to communicate with your child and get him to communicate with you.<br /><br /><a href="http://www.amazon.com/Teach-Your-Baby-Physically-Superb/dp/0971131740/ref=sr_1_7?s=books&ie=UTF8&qid=1310044641&sr=1-7">How to Teach Your Baby to Be Physically Superb: Birth to Age Six </a>by Glenn Doman, Douglas Doman and Bruce Hagy<br />A plan of action to start doing at home therapy with your baby right away. The early development of mobility in the newborn baby is a vital part of his future ability to learn and grow to his full potential. The authors show clearly each stage of mobility and how to create an environment that will help the baby to achieve each stage more easily.<br /><br /><a href="http://www.amazon.com/Early-Communication-Skills-Children-Syndrome/dp/1890627275">Early Communication Skills for Children with Down syndrome</a> by Libby Kumin<br />This guide is based on Libby Kumin's thirty years of experience of working with children and adolescents with Down syndrome and their families. Dr Kumin draws on her vast experience to show parents how they can support and encourage their child's speech and language development from birth to age 6 (or when a child can form 2- to 3-word sentences). Parents and teachers learn how to work through characteristic challenges, including hearing loss, intelligibility issues, apraxia (difficulty planning oral-motor movements), or a slower pace of development. Families soon see that many children with Down syndrome are natural and willing communicators.<br /><br /> <a href="http://www.amazon.com/Gross-Motor-Skills-Children-Syndrome/dp/0933149816">Gross Motor Skills in Children with Down syndrome: A Guide for Parents and Professionals</a> by Patricia C. Winders<br />Has very helpful exercises in it to give our kids opportunities for physical development. As you go through the exercises, please keep in mind: our children should not be put into positions that their bodies (bones, muscles) may not be ready to support. Encouraging movement and giving them opportunities to put themselves into positions is great. If you are mindful of this idea, it's a safe book to follow.<br /><br /><a href="http://www.amazon.com/books/dp/1890627674">Fine Motor Skills for Children with Down syndrome: A Guide for Parents and Professionals</a> by Maryanne Bruni<br />Has activities to encourage fine motor skills from birth to early adolescence.<br /><br /><a href="http://www.google.com/search?q=What+To+Do+About+Your+Brain-injured+Child&ie=utf-8&oe=utf-8&aq=t&rls=org.mozilla:en-US:official&client=firefox-a#q=What+To+Do+About+Your+Brain-injured+Child&oe=utf-8&rls=org.mozilla:en-US:official&client=firefox-a&um=1&ie=UTF-8&tbo=u&tbm=shop&source=og&sa=N&hl=en&tab=wf&bav=on.2,or.r_gc.r_pw.&fp=f50de20941def1f6&biw=1024&bih=615">What To Do About Your Brain-Injured Child</a> by Glenn Doman<br />If you are action-oriented, you can read this one later. But if you want to better understand the theory behind the Doman methods in order to get motivated, read it sooner. Would be a good companion to read while you work with How to Teach Your Baby to Be Physically Superb. Okay to get from the library rather than purchase.<br /><br /><a href="http://naturallybetterkids.com/products-page/naturally-better1/naturally-better-paperback-delivery-to-usa-canada-south-america/">Naturally Better Kids</a> by Kristin Morrison<br />A great book that shares Kristin's journey as she struggles with her son, Griffin's diagnosis and finds answers to treat him. She has great ideas here, but it can be overwhelming at times since it's written in journal style instead of as a step-by-step how-to book. Be ready to cry and rejoice with her! She also has an immediately downloadable version.<br /><br /><a href="http://www.google.com/search?q=how+to+teach+your+baby+to+read&ie=utf-8&oe=utf-8&aq=t&rls=org.mozilla:en-US:official&client=firefox-a#q=how+to+teach+your+baby+to+read&oe=utf-8&rls=org.mozilla:en-US:official&client=firefox-a&um=1&ie=UTF-8&tbo=u&tbm=shop&source=og&sa=N&hl=en&tab=wf&bav=on.2,or.r_gc.r_pw.&fp=f50de20941def1f6&biw=1024&bih=615">How to Teach Your Baby to Read</a> by Glenn Doman, Janet Doman<br />This is a super great book. You don't need to start this until your baby can identify pictures, but you need time to read it and to make or purchase the flash cards. If you are making them yourself, you need a couple of months to do it so you won't be overwhelmed.<br /><br /><a href="http://www.google.com/products/catalog?q=how+to+teach+your+baby+to+swim&oe=utf-8&rls=org.mozilla:en-US:official&client=firefox-a&um=1&hl=en&bav=on.2,or.r_gc.r_pw.&biw=1024&bih=615&ie=UTF-8&tbm=shop&cid=7638169728997470757&sa=X&ei=pi4XTsPbMqy60AH0s6Fh&ved=0CFQQ8wIwAA">How to Teach Your Baby to Swim</a><br />You can start this right away, if desired. If you believe you may encounter asphyxiation problems, you may want to leave this to a professional.<br /><br /><a href="http://www.google.com/products/catalog?hl=en&ds=pr&pq=how+to+teach+your+baby+to+swim&xhr=t&q=How+to+Teach+Your+Baby+Math&cp=27&qe=SG93IHRvIFRlYWNoIFlvdXIgQmFieSBNYXRo&qesig=ajftUXUzK4eKZnFBHSlugA&pkc=AFgZ2tk8lwrhYSHXEp4lZ2ur5Tz7liPDzULEoUQmk2H2I61hewK1A43CkCoMUBrsOdou-Hgx_Tk5uGa9mAhBCgeSym8vseL7BA&client=firefox-a&rls=org.mozilla:en-US:official&bav=on.2,or.r_gc.r_pw.&biw=1024&bih=615&bs=1&um=1&ie=UTF-8&tbm=shop&cid=6912285476028369919&sa=X&ei=FS8XTtS0NeXh0QHP9qUz&sqi=2&ved=0CFkQ8gIwAA">How to Teach Your Baby Math</a><br />You don't need to start this until you've started teaching him to read, but before two years old is best (although with DS, your window of opportunity may be longer). Again, you need time to read this book and to make or purchase the flash cards. After you've read How to Teach Your Baby to Read, you would only need to get this book from the library since it follows many of the same principles.<br /><br /><a href="http://www.google.com/search?q=How+to+Multiply+Your+Baby%27s+Intelligence&ie=utf-8&oe=utf-8&aq=t&rls=org.mozilla:en-US:official&client=firefox-a#sclient=psy&hl=en&client=firefox-a&rls=org.mozilla:en-US%3Aofficial&tbm=shop&source=hp&q=How+to+Multiply+Your+Baby%27s+Intelligence&aq=f&aqi=&aql=&oq=&pbx=1&bav=on.2,or.r_gc.r_pw.&fp=f50de20941def1f6&biw=1024&bih=615">How to </a><a href="http://www.google.com/search?q=How+to+Multiply+Your+Baby%27s+Intelligence&ie=utf-8&oe=utf-8&aq=t&rls=org.mozilla:en-US:official&client=firefox-a#sclient=psy&hl=en&client=firefox-a&rls=org.mozilla:en-US%3Aofficial&tbm=shop&source=hp&q=How+to+Multiply+Your+Baby%27s+Intelligence&aq=f&aqi=&aql=&oq=&pbx=1&bav=on.2,or.r_gc.r_pw.&fp=f50de20941def1f6&biw=1024&bih=615">Multiply Your Baby's Intelligence</a> by Glenn Doman and Janet Doman<br />Has some of the same information as How to Teach Your Baby to Be Physically Superb, but is different. You may want to look through them both and decide whether or not to get them both. <br /><br /><a href="http://www.amazon.com/Give-Your-Baby-Encyclopedic-Knowledge/dp/0757001823/ref=sr_1_1?s=books&ie=UTF8&qid=1372276233&sr=1-1&keywords=how+to+give+your+baby+encyclopedic+knowledge">How to Give Your Baby Encyclopedic Knowledge</a> by Glenn Doman and Douglas Doman<br />The Achievement of Human Potential has demonstrated that children from birth to age six are capable of learning better and faster than older children. This book shows just how easy it is to teach a young child encyclopedic knowledge.<br /></span><br />
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<span style="font-family: inherit;"> Therapy Websites</span></h3>
<span style="font-family: inherit;"><a href="http://talktools.net/">Talk Tools</a><br /><br /> <a href="http://www.jamesdmacdonald.org/">Communication Partners</a></span><span style="font-family: inherit; text-align: center;"><br /></span></div>
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<a href="http://dsdaytoday.blogspot.com/p/therapy.html" style="font-family: inherit;">Down Syndrome: A Day to Day Guide</a><br />
<span style="font-family: inherit;">In this blog, you'll find an organized place for therapy and biomedical information you need to care for your loved one with T21. Featured child, Jett, started reading at 17 months old and read his first book at 25 months old. He speaks with above typical enunciation and is healthy and active.</span><br />
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<a href="http://thedownsyndromeactionplan.blogspot.com/" style="font-family: inherit;">The Down Syndrome Action Plan</a><br />
<span style="font-family: inherit;">Occupational Therapist, Geralyn Spiesz, shares her success with her son, Lucas, who is doing very well.</span><br />
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<a href="http://myplace.frontier.com/~ezlopin/johnmarrs/id1.html" style="font-family: inherit;">My Place</a><br />
<span style="font-family: inherit;">Parent, Jenny Mars shares her therapy plan and success. Her son, now 18, has graduated with Honors from High School and has enrolled into their local Community College to study to be a kindergarten teacher.</span><br />
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<a href="http://downsyndromeupupupandaway.blogspot.com/search/label/therapy" style="font-family: inherit;">Up Up and Away!</a><br />
<span style="font-family: inherit;">Parent, Laura started this blog hoping to inspire other parents to help their children with Down syndrome reach for the sky! Her daughter was reading words before she was 2 years old & reading books by 3.5 years. She believes kids with Down syndrome can do amazing things if we give them the right tools.</span><br />
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<a href="http://community.babycenter.com/groups/a6729133/unlimited_potential" style="font-family: inherit;">Baby Center's Unlimited Potential Forum</a> <br />
<span style="font-family: inherit;">A group of parents of young children w/DS who believe in their child's unlimited potential focusing on Neurodevelopment Therapy and biomedical intervention. You visit the website to read the past posts and then post as needed. Is visible to anyone. Not a private group.</span><br />
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<a href="http://health.groups.yahoo.com/group/communicating" style="font-family: inherit;">Yahoo's Communication Support Group</a> <br />
<span style="font-family: inherit;">Learn how to slow down and playfully interact with the goal of speech, with emphasis on teaching preverbal and communication skills.</span><br />
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<span style="font-family: inherit;"> Therapy DVDs</span></h3>
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<a href="http://www.blogger.com/Parent%20Kit:%20Using%20Oral%20Placement%20Therapy%20With%20Your%20Child%20-%20TalkTools%C3%82%C2%AE" style="font-family: inherit;">Parent Kit: Using Oral Placement Therapy With Your Child - TalkTools®</a><span style="font-family: inherit;"> This is a great DVD for parents to learn quality, at-home speech therapy. You can purchase the entire parent kit which includes all the tools necessary including a 3-hour DVD where Sara R. J. demonstrates how to use each of the tools at home. This is a link to just the dvd </span><a href="http://www.talktools.net/s.nl/it.A/id.1669/.f?sc=23&category=3356" style="font-family: inherit;">http://www.talktools.net/s.nl/it.A/id.1669/.f?sc=23&category=3356</a><span style="font-family: inherit;"> . Talk tools works on building oral motor skills (muscles in the mouth) to build a foundation for speech production.</span><br />
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<a href="http://www.jamesdmacdonald.org/Video/ECOI.html" style="font-family: inherit;">Communicating Partners DVDs</a><span style="font-family: inherit;">: ECO I and ECO II and Shortcuts are great companions to or replacement for the Play To Talk books because they show you exactly what to do and how to do it. I'm a big fan of James D. MacDonald's techniques.</span><br />
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<span style="font-family: inherit;"> Therapy Blog Posts</span></h3>
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<a href="http://einstein-syndrome.com/2009/06/08/7-pursue-speech-not-sign/" style="font-family: inherit;">Pursue Speech, not Sign</a><span style="font-family: inherit;"> on the Einstein syndrome website.</span><br />
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<span style="font-family: inherit;">If you choose to teach sign language, here's a nice post to help you </span><a href="http://blog.gretchenmather.com/2012/05/14/whats-next-how-to-teach-your-baby-to-read-sign/" style="font-family: inherit;">teach your child to sign</a><span style="font-family: inherit;"> by Gretchen Mather of Julian's Journey blog. </span><br />
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<a href="http://dsdaytoday.blogspot.com/2011/04/how-to-spoon-feed.html" style="font-family: inherit;">How to Spoon Feed</a><span style="font-family: inherit;"> from Down Syndrome: A Day to Day Guide blog.</span><br />
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<a href="http://dsdaytoday.blogspot.com/2011/03/breastfeeding.html" style="font-family: inherit;">Proper Breastfeeding for Down Syndrome</a><span style="font-family: inherit;"> from Down Syndrome: A Day to Day Guide blog.</span><br />
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<a href="http://bitsofreallife.blogspot.com/2011/08/oral-motor-therapy.html" style="font-family: inherit;">Oral Motor Therapy</a><span style="font-family: inherit;"> from the Bits of Real Life blog</span><br />
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<a href="http://hannigans.blogspot.com/2010/04/jaw-jaw-jaw-jaw.html" style="font-family: inherit;">Oral Motor Therapy: The Jaw</a><span style="font-family: inherit;"> from Hannah's Shenanigans blog. </span><br />
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<a href="http://hannigans.blogspot.com/2010/05/this-sucks-that-suckles-this-bites.html" style="font-family: inherit;">Oral Motor Therapy: Sucking vs. Suckling</a><span style="font-family: inherit;"> from Hannah's Shenanigans blog. </span><br />
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<a href="http://dsdaytoday.blogspot.com/2011/04/how-to-spoon-feed.html" style="font-family: inherit;">How to Spoon Feed</a><span style="font-family: inherit;"> from Down Syndrome: A Day to Day Guide blog.</span><br />
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<a href="http://billandria.blogspot.com/search/label/TalkTools" style="font-family: inherit;">Straw Therapy 1-8</a><span style="font-family: inherit;"> from Bill and Ria's blog. </span><br />
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<a href="http://hannigans.blogspot.com/search/label/oral%20placement" style="font-family: inherit;">How to get your local Speech Therapists trained in Oral Motor Skills</a><span style="font-family: inherit;"> from Hannah's Shenanigans blog. </span><br />
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<span style="font-family: inherit;"> Therapy Facebook Pages</span></h3>
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<a href="http://www.facebook.com/pages/Down-syndrome-A-Day-to-Day-Guide/193837467378474" style="font-family: inherit;">DS Day Today's Community Page</a><br />
<span style="font-family: inherit;">Connect with other parents who practice outside of the box therapy for their kids with DS.</span><br />
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<a href="http://www.facebook.com/groups/169228616513824/" style="font-family: inherit;">The Kay Ness Group</a><br />
<span style="font-family: inherit;">Neurodevelopmentalist, Kay Ness posts tons every day on topics not always specific to T21, but ones that support a healthy lifestyle, proactive ideas and the latest research. If you don't have time to explore the internet yourself, let Kay do it for you.</span><br />
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<span style="font-family: inherit;"> Therapy Products </span></h3>
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<span style="font-family: inherit;">The complete kit </span><a href="http://www.talktools.com/dvd-o-m-approach-to-apraxia-in-children-3hr/" style="font-family: inherit;">Talk Tooks Apraxia kit</a><span style="font-family: inherit;"> w/instructions.</span><br />
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<a href="http://www.blogger.com/%20http://itunes.apple.com/us/app/speech-therapy-for-apraxia/id512647583?ls=1" style="font-family: inherit;">Speech Therapy for Apraxia NACD Home Speech Therapist</a><br />
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<span style="font-family: inherit;">NACD's speech app for iPad works on syllable production for all of the different speech sounds (phonemes).</span></div>
Unknownnoreply@blogger.comtag:blogger.com,1999:blog-7400925395674842077.post-72337290143556502962013-03-01T14:10:00.002-06:002013-06-26T15:28:49.268-05:00My Quest for Balance<h2 data-mce-style="color: #3d85c6; text-align: center;" style="color: #3d85c6; line-height: 19px; text-align: center;">
<span data-mce-style="font-size: large;" style="font-family: inherit; font-size: large;">My Quest for Balance</span></h2>
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<span style="font-family: inherit;">by Jane Winans</span><br />
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<a href="http://1.bp.blogspot.com/-NU94DO6u06s/UUIxRdTupXI/AAAAAAAAADM/rNMlypwi01I/s1600/piper-blue8.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><span style="font-family: inherit;"><img border="0" src="http://1.bp.blogspot.com/-NU94DO6u06s/UUIxRdTupXI/AAAAAAAAADM/rNMlypwi01I/s1600/piper-blue8.jpg" /></span></a></div>
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<span style="font-family: inherit;">In a world full of catch phrases like “Just do it” “Make every moment count” “No regrets” “Live like you’re dying” and “Seize the day”, it’s no wonder some of us are a little off balance. Home, family, work, exercise, community service, friends, relatives… add a child with special needs and you may include therapy, doctor appointments, dietary restrictions, supplements, medications, extra time with homework and increased worry for our child’s health and development. With all that, who has time for balance?</span><br />
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<span style="font-family: inherit;">Balance is tricky. I’m still learning how to create and maintain balance. Sometimes I get it right… for a while… and then I’m back to my old ways of donning the super woman cape. Fairly quickly my body or my family reacts in a way that indicates I’ve swung off center again. Like anything, it’s a learning process. I told my neighbor I was writing this article and felt like a fraud. “I swing in and out of balance all the time!” I bemoaned. To which he replied, “Isn’t swinging in and out of balance, by definition, balance?” Mike Cusick is brilliant. I like his way of thinking!</span></div>
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<span style="font-family: inherit;">I think the first step to becoming balanced is to become aware. How long is your to-do list? Is it realistic? Do you expect yourself to accomplish tasks that aren’t humanly possible given the time you have? Do you focus on your accomplishments or on what you didn’t get done that day? Is the glass half full or half empty? Do you have joy? Are you making yourself or your family nuts by trying to control what isn’t in your control?</span></div>
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<span style="font-family: inherit;">A lot of my stress and anxiety centered on my feeling like a failure. If only I worked harder or smarter or more efficiently, then Lydia would have better muscle tone, clearer vision, increased auditory processing, etc. After 9 long years of contemplation and reflection, I no longer think this is true. I can and will do my best to help Lydia grow and develop, but ultimately, it’s not in my control. I often pray: God grant me the serenity to accept the things I cannot change, courage to change the things I can and wisdom to know the difference. I trust my God has a plan for Lydia. She has a good life. She will continue to have a good life regardless of her challenges. Her journey looks different than mine, but who is to say her life isn’t more full, more joyful? </span><br />
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<span style="font-family: inherit;">If we judge our lives by answering the question, “How well have you loved and how well have you been loved,” then the playing field is level for all of us, regardless of physical or intellectual strength. Lydia’s ability to love and be loved is grace from God. She’s fabulous at it! When I view life from this perspective, failure isn’t an option because I’m not in the picture. It’s not about me.</span></div>
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<span style="font-family: inherit;">Having said that, I think it’s important to acknowledge our vital role in the health of our children. “In case of an emergency, put your oxygen mask on first. Then assist your child.” Our kids need us. It’s important that we take care of ourselves so we can take care of them. Self care is not selfish. It’s being responsible. </span><br />
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<span style="font-family: inherit;">Here are some ideas you can try to help with the balancing act.</span></div>
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<li><span style="font-family: inherit;">“Do what you can with what you have where you are,” Theodore Roosevelt. I like to add, “And be at peace.” If organic veggies aren’t an option, rinse regular ones with vinegar and water. If one therapy is cost prohibitive, figure your next best option that fits the budget. If you need a mental health day at the beach, take it! Life is a journey to be enjoyed! Peace is healing. Balance is healing. Do what you can with what you have, where you are, and be at peace.</span></li>
<li><span style="font-family: inherit;">Ground yourself daily. Chi gong, tai chi, yoga, meditation, prayer and exercise can help me stay grounded. When I took Chi gong, my instructor would not allow me to move the energy above my waist. My head swirls with constant thought and my heart overflows with emotions. I need to ground my energy every day to stay balanced. Earthing.org has products for grounding which also help reduce inflammation. Heartmath.org has a computerized program that also helps with grounding.</span></li>
<li><span style="font-family: inherit;">Focus on the positive things you do every day. Write positive affirmations. “I’m getting better at balancing my life. I’m peaceful, knowing my child and I are doing our best. I enjoy my life and all the people in it.” What you focus on grows.</span></li>
<li><span style="font-family: inherit;">Keep a gratitude journal. What you focus on grows.</span></li>
<li><span style="font-family: inherit;">Take off the super hero cape! Do what you can with what you have where you are! (Theodore Roosevelt) And be at peace!</span></li>
<li><span style="font-family: inherit;">Accept that there’s no “one right way.” Our kids are individuals and so are we. What works for one child might not work for yours. Shelve the perfectionism! Find what works for you. Do what you can with what you have where you are and be at peace! I also helps me to remember, “The less I seek my soul for some definitive, the closer I am to find.” The Indigo Girls.</span></li>
<li><span style="font-family: inherit;">Gather your village! I don’t believe God intended us to do this alone. What friends, family, neighbors or strangers would love to help you? Humans have a need to feel connected. It’s good for them and it’s good for you. Can you organize things into manageable 1 hour tasks and ask for help?</span></li>
<li><span style="font-family: inherit;">Sign up to get daily emails at flylady.org or buy her book. This is one of my favorites! Flylady focuses on establishing routines in your house so that cleaning doesn’t control your life. She is funny and wise. She believes “You are not behind. Jump in where you are with 15 minutes a day” and that is true with helping our kids also. “Perfectionism is shelved for 2012” – woot woot! Perfectionism is unrealistic expectations which can lead to crash and burn or feeling like a failure. I often laugh out loud when I read her emails.</span></li>
<li><span style="font-family: inherit;">Laugh! Out loud if possible! Rent a comedy, sign up for a joke a day, giggle with your kids. Laughter is magic. It heals the soul.</span></li>
<li><span style="font-family: inherit;">Eat well, drink water and take your vitamins. You are important and so is your health.</span></li>
<li><span style="font-family: inherit;">Commit to no guilt. Guilt is a waste of time. You can’t change the past. Accept your humanness and move on. Do what you can with what you have where you are… and be at peace!</span></li>
<li><span style="font-family: inherit;">Look at the slope of your child’s progress and not the day to day. It’s painful to miss milestones. It’s difficult to handle a really stinky OT report, consistently. Believe me, I know. It’s hard not to feel our child’s progress report isn’t <strong>our progress</strong> report. PLEASE TRY. Riding the rollercoaster of “Doing well here” “Not doing well here” is HARD!! And it doesn’t get easier!! By our request, Lydia’s energy and focus is tracked by her teachers in both the morning and afternoon. It helps me to identify when there is a health issue like a change in thyroid function, the beginning of an ear infection, etc. I used to ride the daily performance rollercoaster… holding my breath as I opened her notebook, hoping she did well that day. What insanity! Why the self torment? Everyone has rough days! If I focus on the slope of Lydia’s development, I see her amazing growth. If I focus on the nuances of single day performances, then I get caught with my super hero cape in hand, thinking I have control… driving myself crazy with unrealistic expectations. (God grant me the serenity to accept the things I cannot change courage to change the things I can and wisdom to know the difference.)</span></li>
<li><span style="font-family: inherit;">Make time to do things you love. Need childcare? Swap babysitting hours with a friend. Organize a babysitting co-op. Sing. Dance. Paint. Walk barefoot. Nurture your soul.</span></li>
<li><span style="font-family: inherit;">Host a “Family Cook Afternoon”. My kids, husband and I will brown 10 pounds of meat and make gallons of soup while listening to fun music. We set a goal, divide tasks, and reward ourselves when it is done. We freeze things in both family and individual size portions. This helps tremendously when time is tight for cooking.</span></li>
<li><span style="font-family: inherit;">Nurture your relationship with your husband. Schedule regular date nights with your spouse. Share one thing you are grateful for about each other before bed. Language of Love is a good book to read. It helped me understand that my husband shows love through service – doing things around the house, while I show love through communication and shared activity. Understanding what we each need to feel love helped. Knowing my husband feels loved when I clean his office or put his laundry away completely changed my attitude. I can now view some mundane chores as loving service, where before I didn’t see that at all. He also realizes that I would much prefer going for a walk or talking instead of him finishing the dishes. A friend thinks I’m crazy. She would take the dishes! We all have our own language of love and I recommend you check this book out. It helps me understand my daughters’ language of love too.</span></li>
<li><span style="font-family: inherit;">Stay present with your other kids and really listen to what they are telling you. My older daughters are very self sufficient. They do well in school, are responsible and have nice friends. It’s easy to take their development for granted. I need to remember that they need me too, even though it’s not always apparent. What insecurities are creeping up in their lives? What classes could they use encouragement in? Have my positive comments outweighed my nagging about the littered trail they leave behind? I try to make time to be present with them daily, and to tell them I love them every day. I try to own my mistakes and say I’m sorry. We watch Modern Family, play THINGS (great game for anyone who can write) kickball, Google jokes and laugh… laughter is good for everyone’s soul. I try to appreciate them each and every day because there are no guarantees for any of us.</span></li>
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<span style="font-family: inherit;">We are role models for our children, both consciously and unconsciously. If I expect perfection from myself, my children will too. If I judge myself harshly, my kids will do the same. If I model self love and acceptance, my children will know what that looks like and feels like. When we focus on gratitude we nurture a positive view of the world.</span></div>
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<span style="font-family: inherit;">Love. Acceptance. Inclusion. Compassion. Education. Empowerment.</span></div>
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<span style="font-family: inherit;">Everything we wish for our children, I wish for you. And when this is realized, I believe we find balance.</span></div>
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<span style="font-family: inherit;">Love and peace and joy to you always,</span></div>
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<span style="font-family: inherit;">Jane Winans</span></div>
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<span style="font-family: inherit;">We'd love to hear your experience with a therapy that you have found worth the time, money and energy please write to <a data-mce-href="mailto:options4DS@gmail.com" href="mailto:options4DS@gmail.com" target="_blank">options4DS@gmail.com</a>.</span></div>
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